G'day my ms family I hope "YOU"all slept well and are ready for another bright and shiny day. Any pain that “YOU” have is pain that “YOU” can bear and cope with. Not too much, but if “YOU” have to have it just enough.
I would never suggest that “YOU” be a selfish person because “YOU” have ms. In the beginning, we all can be a little selfish and demanding. I think that this may be normal. We all have been turned upside down and twirled around with this diagnosis. We do not know what or where our new normal is. What lies in our future, do we even have a future. From my experience, I can say, “YES, YES YOU DO” have a future. It will not always be as “YOU” expected or had planned, but “YES YOU” do have a future and it is not always one of needles, doctors visits and suffering. I have had ms over twenty years and my neurologist got rather upset with me a few years ago because I did not see him often enough. It appears that eighteen months between visits was a bit much. I ended up agreeing to every twelve months. I thought that was a compromise on my part, and blood tests every year or so.
Be smart, slow your ms down. I once heard a Doctor online say make it a boring disease. “YOU” can not cure your ms, but there is no reason why it can not be tamed a little and made boring, uneventful. Something that is there but not front and centre in your face influencing your every move. It is very possible to adapt yourself to having a much more stable and happy life. Not one where “YOU” are constantly in fear of what is next.
I wake up each morning expecting everything to work. Perhaps not at 100%, I am 50 something years of age. I do not expect not to be able to get out of bed, walk to the toilet (bathroom), put on the pot of coffee and the bread in the toaster. I expect to do these things because yesterday I did my sit-ups, chin-ups, practised getting up from the floor alone. I trained myself for the possibility that one day I might need to do it. I put things back where they go. Paid attention to what I did, so simple tasks are locked into my muscle memory. Like a good boy scout I am prepared, I was never a boy scout by the way. Are “YOU” understanding what I am trying to say? This disease will be with “YOU” the rest of your long life. Prepare yourself for it, every day for the rest of your long life. Do not cry and weep and say why me. The answer is simple and it is merely “BECAUSE”. No rhyme or reason, just “BECAUSE”.
With that being our reason, now “YOU” and I must do things we never thought we could do and start living well with it. Strangely enough, those things we never thought we could do we actually can. People say what they can not do because they have ms. I prefer to look at all the things I can do because of ms. I am very lucky, though at first, I did not think that. “YOU” might not think “YOU” are lucky but “YOU” might just think it is not that bad, one day. Live your life well and be happy. ms hates when "YOU" are happy and content.
Royce (your ms writer)
One day you will be happy
