It will be okay. I will not tell “YOU” that “YOU” are in for a two aspirins and a laydown cakewalk, sadly “YOU” are not. I will tell “YOU” that “YOU are in for a very long lifetime journey. There will be some pitfalls and some mountains that “YOU” must face and climb. Today reading this “YOU” may not think that “YOU” can, but I will tell “YOU” something from my own 20+ years experience and she who must be obeyed 23+ years.
YOU can live, live well and live strongly with Relapsing-Remitting ms (RRms). Your life is not over, it has not ended. It has just begun and “YOU” have a choice to make. Is it to be glorious and happy as “YOU” want it to be. OR the option is there to sit in the cold dank corner and cry, but another option is also there. It may take a little effort but wipe away those tears. Do not worry they may come back over your many years with RRms) The effort that “YOU” must today make is to start planning and start putting in place what “YOU” would like your future to be. Nobody dies from ms, we die from not planning what and how we are going to live our life. That and old age of course. Think about it, if “YOU” smoke, “YOU” are planning and making the possibilities of various cancers possible. If “YOU” do not eat healthily and exercise, “YOU” are planning for heart disease, obesity to be in your life.
Plan and make moves for as many good things to happen as possible. If not as few bad things as “YOU” can. “YOU” have a big bad thing happening now. Incurable, chronic, progressive ms. Do your very own research and find the options that are available to “YOU”. Do nothing and “YOU” face progressive disability and all that it may contain. Follow a “natural” course and see how that goes, badly. Try the recommended Disease-Modifying Therapies and “YOU” at least face disease progression but at a slower rate. These are very serious medicines, they all have side effects of one type or another. These side effects can be managed but they are always present. Do NOT do nothing because it hurts or they scare “YOU”. Now is not the time to be scared, now is the time to take action, and most certainly “YOU” are strong enough, resilient enough, bloody-minded(stubborn) enough to start doing something positive for your now and for your future.
There is a lot to this disease, but “YOU” have to start somewhere. Start with your DMT. It will not cure “YOU” it merely slows down disease progression. Nothing cures us, learn to accept that, it makes life easier. I might suggest the strongest medicine that “YOU” can lay your hands on. I will make it easy, it is currently Ocrevus. I prefer the constant reminder of a twice a day tablet (Tecfidera) but I really do not like needles. Go look up a Dr Aaron Boster MD of the Ohio ms clinic on YOUTUBE and watch his articles. Follow the msGym on Facebook (I think) Start following the American Cancer eating guidelines. If “YOU” are much stronger than me go vegetarian, vegan. It will not cure “YOU” but it is healthy and will help to keep “YOU” healthy.
Everything we are doing is to make the many years of our life healthy, happy, pain-free and productive. We do not have to be a corporate worker to be productive, there are many other ways. We all are sick. Why do you not stabilize yourself and find a way that “YOU” can improve the life around “YOU” It need be nothing more than a hello or a cheery smile at the grocery store.
Royce (The ms writer)
Today take your DMT and smile, it will be okay. Different but okay if that is what you want.
