G’Day, my ms family. Sweet dreams and a good nights sleep for all I hope. Last night I think I slept well and all my Amazon shopping is here so life must be good. At least as good as it can be all things considered. I have a morning cup of Earl Grey (tea) so I am happy.
From yesterday I think a little clarification is warranted. “YOU” and I need Disease-Modifying Therapy (DMT) TAKE IT. If “YOU” are not suffering with every dose it is most likely working. If after a time “YOU” are still suffering then perhaps a different one may be called for. Remember it is disease Modifying NOT Disease curing. Nothing is, it hurts I know but “YOU” must accept that, come to terms with it and live your best life. We sometimes hear of people who committed suicide with this disease. I am not a medical professional but I will say very loudly DO NOT DO IT. “YOU" are much better than that and this disease will not beat “YOU”. Humble “YOU” most certainly, but beat “YOU” there is no need for that.
We are all on a slippery slope with this illness. For some, we just go downhill. Do not accurate your ride, find ways to slow it. I will even say stop it. She Who must be Obeyed did a course of Intravenous Immuno Gamma Globulin (IVIG) a few years back and she has been doing very well for years. Certainly, nothing has been reversed, but nothing has gone forward. Aim for this, set it as your goal. Be the first person who stopped ms. Do not be another statistic. Aim for the sky, no the farthest heavens. The general information that we all get is that this is a slippery downhill slope we are all on. Do not accept that, say “YOU” are going to be different. Find and embrace things that “YOU” can hold onto. Keep yourself as stable as “YOU” can. “YOU” may slip a little but that is the nature of this very mischievous disease. “YOU” may need other help, accept but be aware of what “YOU” are doing and why. Ask questions, “if I take XYZ pill\Medicine what should I expect, and when?”. This is a very big disease we have. Not all the answers are there to be given. Doctors do not know everything, well-meaning strangers are not holders of that miracle cure that “YOU” may hope for.
Do everything that “YOU” can imagine to slow your slide down that slippery ms slope. Make it your goal that in X years time when they find a cure “YOU” will be eligible to get it. An attitude like that should keep “YOU” in good form for your very long ms life. The alternative of doom, gloom, weakness and fear is not a pleasant way to live a long life.
Royce (your ms writer)
Always do the best for yourself
