G’day my mostly beloved ms Family. I hope “YOU” are all well and happy today, that “YOU” had a good nights and no ms heebie-jeebies. It is a bright sunny day outside, not very cold. Life is good.
I will say this again for those who may have forgotten or just do not know. I am not now and never have been a medical professional of ANY sort. What I say is based upon mine and others experiences. Others are mostly female, close friends and confidants, Not something I found third hand from somebody somewhere. I do not work for anybody except my joint dog and very rarely she who must be obeyed. As I do not work fore anybody I obviously do not get paid by anybody, though if anybody wants to pay me for my opinions I am very willing to take your money, seriously. Perhaps I should make things easier for you and state clearly that something is an opinion and that something is a fact. NO, I do not believe that we are unable to work that out ourselves, of course, if in doubt send me s private message and accept the consequences if I am short with “YOU”. I have RelapsingRemitting ms (RRms as well and do have feelings.
Enough of this nonsense, I am here to help that newby ((Newly Diagnosed) sister who is lost, confused and scared. IT WILL ALL BE OKAY. It is very possible to live a very good life with this illness. It is progressive, it does get worse. That is its wicked nature. It attacks one part of your Central Nervous System (CNS) and keeps attacking “YOU”. There are medicines for this. They are called Disease-Modifying Therapies (DMT), understand DMT is NOT a cure. Nothing that exists today cures our condition. What even causes it is unknown. Though in my opinion it was that extra piece of chocolate cake that my Mother told me NO, but I ate anyway. A lot of the DMT’s involve needle, subcutaneous(shallow under the skin0 intramuscular, deeper into muscle or intravenous (drip style). There are some tablets ,which I now take, and of course there is do nothing. The medicines are very serious medicines, they WILL have side effects, different for each drug but I believe only one will Kill “YOU”. Their effectiveness is only around 40% of reduction of the relapses rate. Not real high, but the best that is available. This is very important, “YOU” want to reduce your relapse rate. The fewer the attacks the more of “YOU” that is not damaged and therefore the more able “YOU” are.
Some people take a wit and see approach. I highly recommend against this. The sooner “YOU get on a DMT the less damage done and the longer “YOU” might stay on two feet. Of course, “YOU” do not believe me or “YOU think somebody else knows better. That is okay I am not upset. Some people delay, eventually take a DMT and regain some abilities, I have seen this first hand This is not normal or proven but it does happen. Are “YOU” willing to bet your future on it? Your choice and I do not judge “YOU” either way.
I do not judge “YOU in any way, but the world does, and usually in the cruelest way possible. Be ready for this. Put on your armor and hold your shield tight. “YOU” and I are disabled now, we are different. We are not looked upon as 100%, and we all know what happens to different people. They are avoided, scorned, ridiculed, I am very sorry but this is human nature. A sad part of our species. I can not give “YOU” a tool to defend yourself with in every situation, maybe I can. Know yourself, believe in yourself, do not pity yourself. This is a lifelong illness with no known cause, and no known cure.
“YOU” can live this disease, find armour, and wear yours tight, shield yourself against the ugliness of our world. Be a bright guiding light. If “YOU” armour yourself well, but still let the warmth of the world, in, “YOU” should do well and find that “YOU” can live your years happily.
Royce (your ms writer and Brother)
Believe in your value
