follow up on my 4th ocrevus: thank you all... - My MSAA Community

My MSAA Community

9,440 members21,224 posts

follow up on my 4th ocrevus

pamgarner profile image
10 Replies

thank you all for all your well wishes!It was very uneventful for the treatment.happy days! of course,with the steroids I feel fabulous right now,I need it, will come to the end,but for now...:)Now the hospital I get this at,they moved the infusion center in the hospital and it is beautiful,but were still disorganized ,I was 30 min.late being called back for appt. and that was no big deal,but what was I had to wail 2 1/2 hours for my ocrevus to be delivered from phamacy,because they won't make it until you are there,never took that long,so I live 70 miles away and I went in it was getting daybreak,and I came out it was getting dark,8:15 am to 4:30 pm.urrgghh! never like that, 3 or 4 hours max. and 70 miles home .they will get better.to those that don't know my story,I had a side effect the first 3 times, and instant sore throat and they give me more meds and instantly better,so now that they expect it,so now they double my pre meds.steriods and since I am allergic to benedryl they give me Zyrtec and make me start taking it at home 1 week out and give me doulble, it works!!!I know I sound whiny but the treatment went great and I grateful for all meds for this disease! only 2x a year!

Written by
pamgarner profile image
pamgarner
To view profiles and participate in discussions please or .
Read more about...
10 Replies
rjoneslaw profile image
rjoneslaw

That is great that everything went well.

Who cares u were a little whiny u deserve the right to be after everything that happened in the past

Whiny on Whiny on my sister

pamgarner profile image
pamgarner in reply torjoneslaw

:)

Iona60 profile image
Iona60

Glad that it went well and hope that you don't have any post infusion set backs.

pamgarner profile image
pamgarner in reply toIona60

I feel great, hope it stays!

greaterexp profile image
greaterexp

Hurrah for a great experience with the meds, but I'm sorry about the delays. I hope next time that it goes more smoothly.

pamgarner profile image
pamgarner in reply togreaterexp

thanks I feel great!give them time they will get together,they have 6 months right?:)

twooldcrows profile image
twooldcrows

fabulous ...that is great mine are at a clinic by the hospital so it is also great for if they is ever a problem for anyone ...this is great ....it is great to only have to go to twice a year ...i love getting the Ocrevus ...a wonderful change from getting shots for years....i have had MS since o4 been on this since07....love ,love.love....yes can you tell it is great...

pamgarner profile image
pamgarner in reply totwooldcrows

thanks feel great the day after!

carolek572 profile image
carolek572CommunityAmbassador

Glad that it went relatively smoothly for you... :-D

pamgarner profile image
pamgarner

thank you,it was just one of life's tests,delays,delays,delays.but I am grateful for the meds!

Not what you're looking for?

You may also like...

My First Ocrevus Treatment

It went pretty good today. I got there at 9:30 am and left at about 3 pm. I was hydrated so no...
hairbrain4 profile image

Ocrevus Infusion

I'm sitting here in the infusion center waiting for the Ocrevus infusion. They already have me...
hairbrain4 profile image

equipment advice Does anyone own a scooter you'd recommend?

today i went to see my sister on public transportation with my walker, now that i'm not driving. I...
Sandydemop profile image

how long between ocrevus

I have been so busy,my husband has been a very sick boy,he has to have heart valve repair work...
pamgarner profile image

Experience with First Round of Ocrevus

I got my first Ocrevus infusion yesterday. They started out by giving me oral doses of Tylenol and...
JensterJ profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.