I have mentioned this before but I will say it again. I suppose that is the thing with ms. Not much changes quickly and things need to be repeated as we have a tendency to forget things,
Okay, lets make this clear. I am not any type of medical professional or a representative of anybody except myself. Yes that is correct. NOBODY pays me for anything I say, and the information I share is from my and she who must be obeyed experience, a combined forty five years and five different Disease Modifying Therapies (DMT) So if “YOU” pardon me I sort of have a reasonable idea what I am talking about. I most certainly do not know everything or claim to. Just a little about a lot. I capitalize “YOU” because I feel that “YOU” are important and I hope that what I say helps “YOU” I do not need to know who “YOU” are, just that one thing I said helps “YOU” one day in some way. Oh I am Australian so sometimes my spelling is different, not wrong just different.
That being said I hope we are now much clearer. Clear as mud, but we all have ms so stop needing definitive clear answers. They do not exist and “YOU” will not find them. This is not that kind of disease, I wish it was but that would take all the fun out of it. It would take away all the mystery and uncertainty. Yes, “YOU” my friend are in for a life of uncertainty, maybe sone pain and sometimes disability, or not. Do not be scared, get used to it. It “IS” life with ms and is not bad it just “IS”. Neither good nor bad. Neither a curse or a blessing, it just “IS”. Strange attitude but believe me from experience it does make life easier and sense eventually.
I might recommend that “YOU” learn to stop asking why. A better question is, “okay, that is what happened, can I fix it? No, so what do i have to do to live with it?” Read it again, maybe one more time and let it sink in.
I am a big fan of crying, letting it out. I do not see tears as a weakness, more as a release valve. Somethings are better out than in, so feel free to cry when “YOU” want or need to. Twenty plus years on my ms journey and I still have some sadness and certainly tears. They never stop completely, get used to that.
I believe to survive ms, that education is a must. Get yourself a poster of the Central nervous system, and also the whole body. Study it, learn it. Make yourself an expert in your body. Know your nerves, where your pain comes from. Follow with your fingers the where things start and stop to give “YOU” the sensations that “YOU” feel. No need to know every name of everything but “YOU” at least “YOU”are less of a victim if “YOU” have some idea of what is happening and why. Do not be overwhelmed, this is a rather large disease so expect things to be big and “DO NOT” be scared. This is ms and without a doubt “YOU” can live well with it. “YOU” can do ms and be happy and live a full and happy life. This never needs to be the end of anything. Perhaps a new and exciting beginning, as always it is “YOUR CHOICE” Choose well and live a long and happy life with your ms. Being calm having a goal and a very flexible plan of action are your friends. Also this group is pretty cool as well
Royce
With you on your journey