I have RRms Relapsing Remitting ms and have had it for over twenty years. I am not any type of medical professional, (RRms)not now not ever. If you need a doctor, see one. I am a very strong advocate for disease-Modifying Therapy (DMT), I am not paid to have this position. My thought always is take the strongest medics first, give it time to let your body get comfortable with it. If after time "YOU" can not handle it then change but never stop taking DMT. I have taken three over my years. I have never been off a DMT and I will not. I plan to be buried with a dose under my tongue. I am not sure if I am an optimist, pessimist or realistic. I will always say that this condition can be made as terrible or bearable as "YOU" like.
It is your attitude, how "YOU" decide how "YOU" want your long life to be. Find inputs that make "YOU" stronger, more resilient.
Royce (the ms writer)
This is your life, yours. Choose to live it as gloriously as you possibly can
Written by
RoyceNewton
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But, I continually wonder how effective Avonex is working as I age (22 years now; dx 25 years ago when Beta was on a lottery). I keep it up as I'm too afraid not to (the devil you know is better than the devil you don't?).
My MRIs have been stable and I'm scared of some of the newer drug side effects. But, I suppose, if MRI had changes or if I had severe progression (instead of the mild progression --- age or ms type of stuff?) I would be more aggressive.
Wonder if I can ever "quiet" my mind to the MS coulda woulda shoulda's?
20 yrs of beta then tysabri, some but little change. In our cat I think the better the meds we know rather than changing. For a newbie different story I would think
we are all here to try and help others to get thru the days with this disease ...helping with the ways we cope ...not any professionals just someone that wants to help each of us if we can ...i have learned a lot on here that we all enjoy life different but we just keep on ...love and much happiness...
I agree Royce that DMT's are very important, without them you are just playing roulette with your life. For those of you that are new, research the different ones, discuss them with your neuro and then pick the one that best suits you. We are all different and they affect us differently, there is not a "one size fits all" DMT.
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