Good morning my beloved family. As always last night was calm peaceful and restful for you. Today I hope will be the same. I am still not a medical professional so what I say is from me not a book or a theory. The fact is this is still an incurable, progressive possibly disabling illness. That is the good news, there is no cure, spend your time proving me wrong, when “YOU” find that I am not, merely shrug your shoulders and say “he told me so, but I had to find for myself”. This is okay, even normal. “YOU” might be sick but “YOU” are not that strange. Coming to this realization might take “YOU” some time, and that also is okay. We all are dealing with a large illness with lots of different combinations. Yours are different to mine, and both of ours might be different to the next persons. This is the wild variability in ms.
With that I can not tell “YOU” everything about your particular ms, let alone ms. I can give “YOU a number of variables, a number of options. Your ms is yours. “YOU” are actually somewhat unique. Not exactly the way “YOU” wanted to be unique, but it is the way we got. It is up to us as individuals to make it work, to suit our wishes hopes and aspirations. Just because “YOU” have ms that is no excuse not to have them. In my travels, I have met several loving couples with ms, several couples that had children and are now parents. Difficult, yes, but entirely possible. Do not give up on yourself. Dream big and achieve those dreams. If “YOU” do not that is okay. Reassess your dreams and change them. I will never be an airline pilot, but I did fly once. It took me a long time to come to terms with that but eventually did. It just took a little time, more than I wanted but I did come to terms with it. I think that if “YOU” sit and honestly look at your life with a clear mind “YOU” actually can come to terms with most things. It is not always straightforward and clear, but a little adaption out of the box thinking “YOU” might be able to fix most things and live a full life.
Do not expect all the answers for your life to be given to “YOU”. Some “YOU” have to work at. No matter how much “YOU” try to get a square beg into a round hole it will not work. Some things “YOU” can not do. Be honest with yourself. This is life, accept it, deal with it and move on. There are things that “YOU” can not do, things that “YOU” were never going to do, ms or not. Try hard to be happy and content with the life that “YOU” do have. It is okay to wish for riches, that svelte 18-year-olds body, muscles like ”the Rock”, but are “YOU” willing to do the work to get them? I would love those muscles, but I am not going to do the work to get them and I do not expect anybody else to do it for me. Not everything about my ms is written. This is a disease of surprises. Many many surprises. Make an effort to ground yourself in some basic disease facts, get from reputable sources. Then make your own story. Might I suggest a GREAT one. No need not to aim for the stars. I do not think I will get to them this lifetime, but that is no reason not to dream big.
Royce (your ms writer)
find answers that suit you/
