As much as we might like to think, we have Relapsing Remitting ms (RRms) we are good surely nothing else will come. Sorry wrong. Yes “YOU” have RRms, but do not take care of yourself and in this day and age with our garbage diets and lack of exercise other problems may be soon to follow. I personally have Type 2 diabetes, she who must b e obeyed has an ongoing weight issue. Now my eye issue which I initially blamed on RRms turns out to be some thing else entirely.
Because “YOU” have RRms does not mean other problems will not occur. “YOU” have to look after yourself, the whole “YOU” not just the Brain and Central Nervous System (CNS), the whole “YOU” Get your Disease Modifying Therapy (DMT) started as quick as “YOU” can do not wait then start making a plan on how “YOU” are going to look after the rest of “YOU” If a Doctor tells “YOU” just wait and see, smile politely as “YOU” walk out the door and go find another doctor. This is a chronic disabling illness. There should be NO just wait and see. fight for diagnoses as quickly as possible. If ms is suspected get it treated. Neither”YOU” or I or anybody else ever got better by taking a wait and see approach. Yes, there are other illnesses that mimic RRms, get yourself tested faster rather than slower, be prepared hat no matter how cute the doctor is, to change him. She who must be obeyed had a very cute Neurologist (Neuro) at first who told her to just wait and see how it goes. She did some research and fired him within the month. This is your health not theirs be your own best advocate do not let yourself be steam hollered.
This is a rather big shock to most people, but is entirely treatable. Never curable but very very treatable. Waiting and see should never be your treatment option.
Once “YOU” have your diagnosis (DX) find your DMT, if after a month, if “YOU” still feel terrible perhaps talk to your Neurologist (Neuro) “YOU” can talk to them can’t “YOU”? Change your DMT. Not every DMT works perfectly for everybody at all times. It is quite okay to change. I am on my number three, she who must be obeyed is on her number two. This illness changes, what works one day may not work a week later. “YOU” may just get sick and tired of injections in your bony arse (ass). I have thought long and hard is the strongest medicine taken every few months good or a less strong one taken daily. This is a decision that “YOU” will have to decide. Can “YOU” still be sensible with a very long acting medicine, or are “YOU” better with more frequent treatments. Can “YOU” handle self injection or is a pill or infusion better? i could not do self injection so I let various women inject me in the buttocks where I could not see it, as soon as a tablet became available, “YOU” know I was on the list waiting for it. I kept myself as healthy as I could, diet exercise and got my tablet. I had a friend that just stopped doin her DMT and today she has no meds and is housebound in a wheelchair. This will not happen to “YOU” because “YOU” are going to be very active in your RRms management and take your medicine. Aren’t YOU? that should not be a question, more of a statement. “YOU” are going to relax take a deep breath, wipe away the tears and start to move along your RRms life path. It is a long journey, there are no prizes at the finish line.
Perhaps one, the knowledge that “YOU” lived your best possible life, and perhaps touched someone along the way. In a good way of course. Not everything is ms there are other things.
Royce
It is Okay to cry every now and again if “YOU” need or want to
Thought I had seen everything
Why does everything take so long?
