life with RRms: life with RRms Does not... - My MSAA Community

My MSAA Community

8,964 members20,687 posts

life with RRms

RoyceNewton profile image
11 Replies

life with RRms

Does not have to be under any circumstances bad. No, it really does not have to be. The choice as always is yours. Without a doubt, there is that a cold dark corner for "YOU_ to huddle and quiver in.

But in the words of my favourite artist, "I am here to tell that there is something else" Find your something else. Twenty years now I have had several something else's. It never stops, the constantly searching for something new. I spent my 30's finding her, my 40's saving for my 50th birthday, now I look forward to writing to "YOU. My 50s I am not sure yet In my 20's I was going to become an international airline pilot. I guess life had other plans for me, just like it might have other plans for "YOU" I am not sure that I can know what the plans are, merely to keep myself as healthy as I can, and be ready for the next opportunity, whenever it might arrive. No matter what it might be.

This illness is a hiccup. An unexpected sharp left turn. Relapsing-remitting ms (RRms) allowed me to find something that I did not know I was looking for, Perhaps with your eyes open, something may find "YOU" Perhaps the greatest honour, is to be a ray of hope for the next generation.

Never allow this condition to put "YOU" to the floor. Bend like bamboo, bend hard but never break, take your time and bounce back, a little wiser, a little stronger and a maybe a little more resilient. This condition is never the end of your story. There is more to write. Make it a good one, a tale told through the generations of your family.

Royce

Just one step at a time is all it takes

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
11 Replies
carolek572 profile image
carolek572CommunityAmbassador

Royce,

Just one step at a time, and soon you will wonder how you arrived at your destination. Do not let 'ms' dictate your journey, instead, enjoy it, savour it, and let others know that you are doing the best that you can. Don't forget to smile!

You are starting to rub off on me!

Carole :-D

RoyceNewton profile image
RoyceNewton in reply to carolek572

Carole, my dear RRms is my journey, I think I may have known that for awhile. I just had little idea of how to travel the road.

Royce :-)

carolek572 profile image
carolek572CommunityAmbassador in reply to RoyceNewton

Royce,

It's not like there is a roadmap for this journey. However, you have shared a very close likeness of what this roadmap might look like, but like a AAA trip booklet, the journey is personalized to every individual need. A AAA trip booklet is a service offered to AAA members to help them 'map' out their trips, highlights best road to take, what choice restaurants/gas stations/hotels that are recommended by other members. This is to assist with having a good experience during your trip. You give them the start, when are you leaving, and the destination.

So, you are offering lots of advice on what you have encountered on your journey, thus far, and for that, thank you.

Carole :-D

RoseySawyer profile image
RoseySawyer in reply to carolek572

Amen. 😊❤🌷

RoyceNewton profile image
RoyceNewton in reply to carolek572

thank You nice of you to say

Lulu521 profile image
Lulu521

Thank you so much for this message, RoyceNewton. I am 59 years old and have lived my ENTIRE adult Life with MS.My symptoms started at age 19 – 39 years ago, but my awesome husband married me anyway and l we are still married to this day – will be 39 years on 24th of this month. We have a 35-year-old daughter that I carried, gave birth to And Raised together as a happy family. She is and always will be the light of our lives with a family of her own now. After she left for college 14 years ago, my progression really started to effect me most. It was at that time that I took to the wheelchair permanently – even though I have used one since 199to 4 lawn walking excursions. BUT, I knew I had to keep myself going in a positive direction,so my husband and I could continue “Rolling with the punches – that’s the name of my book I wrote and published about my/our journey with this crazy disease. There were so many times I wanted to give up Rolling with the punches: my persevering battle with multiple sclerosis. That’s the name of my book I wrote about my/our journey – Part one. Part two is on its way in 2019. Yes, though the journey has been REALLY tough in many ways and with so MANY losses especially physically, I decided I needed to divert my turmoil and negativity into something inspiring in part one, and truthful as to what I and so many go through with MS and other chronic, debilitating illnesses go through in part two. Writing has not only been therapeutic for me, But also educating and enlightning for those who do not understand what people with chronic illnesses and their families go through both positively and emotionally. Writing and observing – especially nature has givien me a whole new outlook on life, and has strengthened my faith and my spirit in words I am unable to define. Hey, I am unable to do just about EVERYTHING for myself, BUT, I AM STILL HERE, And I WILL continue to live my life to its fullest no matter how simple. I am and have enough just as I am.Thank you again for your post. Believe in you, and believe that a cure for MS and ALL chronic illnesses will be discovered one day. Happy early Thanksgiving! ❤️😊

RoyceNewton profile image
RoyceNewton in reply to Lulu521

and to you as well. I hope I am personally so strong at 29 years. 20 so far has been a great laugh, to say the least.

Juliew19673 profile image
Juliew19673

That was so uplifting Royce, thank you!!

RoyceNewton profile image
RoyceNewton

My Pleasure glad you liked it

kycmary profile image
kycmary

Morning Royce seems you always have good advice or food for thought, this is good advice 1 inch at a time if that is all you can do.

RoyceNewton profile image
RoyceNewton in reply to kycmary

it is only from experience and making really bad mistakes

You may also like...

RRms is not a sprint​.

want, just take another step on your very long Relapsing Remitting ms (RRms) journey. It will be...

RRms in 2019

RRms in 2019 Relapsing-Remitting ms (RRms) in 2019 is not an illness to be feared. This is not the

Dx with RRMS but always have symptoms

this an issue for anyone else or am I just weird? I was Dx with Relapsing/Remitting MS at the age...

RRMS vs PMS

The neurologist originally thought I would have RRMS due to the history over the last year. But now...

RRMS blah blah blah

My RRMS was unofficially diagnosed when I was a child of 8 years old at Boston's Children Hospital...