High dose biotin

[IFwczs]

I wanted to have my PCP order the high-dose biotin on Tuesday. They are already using it in France for PPMS, but here it's still in trial phase.

And then I saw this article...

uspharmacist.com/article/hi...

Good-bye, high-dose biotin.

[ssdw1958]

Thank you for finding this information

Good to know.

I read your the information paper it’s kind of scary that they would give this medicine to anyone.

ssdw1958

[IFwczs in reply to ssdw1958]

Welcome to socialized medicine where everyone is a guinea pig. It is like the UK not approving Ocrevus because it's too expensive but using cheap cholesterol drugs to treat MS and claiming they work.

[CraigS]

I was part of a study at UCSF, I didn’t find that the high doses were helping at all, so I stopped.

[IFwczs in reply to CraigS]

Thank you, at least you didn't get hurt. I think I will just give Ocrevus a chance.

[CalfeeChick CommunityAmbassador in reply to CraigS]

CraigS How long ago was the study? I have an appt tomorrow am at the UCSF MS Clinic for a checkup and to talk about maybe starting a DMT.. That was interesting article.

[CraigS in reply to CalfeeChick]

It was last year.

[jimeka]

Thank you, very interesting and informative 🦋

[erash]

Thank you for posting this

[Juliew19673]

Wow that could have been scarey for you and others. Thanks for sharing that!