Being productive: msERs, NO I do not mean... - My MSAA Community

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Being productive

RoyceNewton profile image
28 Replies

msERs, NO I do not mean working long hours or running twenty miles. I mean productive in your thoughts. YOU have a little less energy than YOU used to have, so is ironing the socks really the best use of your time. do not burn yourself out and spend a week in bed when YOU do not ned to.

All YOU need to do is think first, do I need to and what might be the consequences if I do it. Pretty simple really. YOU like me are now disabled. It is not what I had planned in my life, and I bet neither in yours. Let YOU in on something. It is,so now YOU have to change and learn to COPE.

I am not suggesting that YOU sit in the corner facing the wall and feeling sorry for yourself. I am TELLING YOU, thank before YOU do things now. Push yourself, but expect that YOU will fail much earlier than YOU used to, but this is very good. It teaches you the limits of your homeostasis box. That is the box that your body now lives in. A normal person may live in a 10 by 10 sized box. Our msLife gives use a much smaller but very mobile box. Somedays our tolerance to heat is low, others it is high. Our energy is high others low.

Imagine if YOU will that 10 by 10 box. Inside i is a 2 by 2 elastic sided box. Some days YOU can push the edges, move the box. adjust and adapt as YOU need. BUT your box is always smaller 2 by 2. That is what YOU now have with your RELAPSING REMITTING ms. You are not any less of a person than YOU ever where. YOU are not incapable. YOU just have to find your box, remembering with our truly mischievous illness that what was today may not be there tomorrow.

ms is a HUGE illness with a little name. It has a lot of body that it can play with, and trust me it does like to play. It is your job to expect the unexpected. adapt to its moves and be line BAMBOO. When it throws its harshest headwinds at you, just bend. Be flexible enough to bend and resilient enough to bounce back when it eases up. To do this, learn about it. Study the medicines, become educated.

Walk into a doctors office having an idea of what they should say, what treatments there are. Do not just be that person they give more pills to. Be an advocate for yourself, because YOU are the one that lays in bed late at night, just YOU only YOU. Be strong and KNOW that YOU CAN YOU WILL YOU DO and YOU DID IT, maybe with a little help, but thats ok.

Royce

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RoyceNewton profile image
RoyceNewton
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28 Replies
Kenu profile image
Kenu

Don’t know how you do it 🤷🏼‍♂️. What great posts 👍🙏🐾Ken

RoyceNewton profile image
RoyceNewton in reply to Kenu

just lucky at the moment, I have a little advice to share, so I write.

Allen5280 profile image
Allen5280

My 2x2 box is filled with those pesky Gremlins! They are always messin up my stuff and playing havoc on final approach!!! No wonder i dont get alot of stuff finished! 😂🤣😂🤣

RoyceNewton profile image
RoyceNewton in reply to Allen5280

That is half the fun of it

jimeka profile image
jimeka

Another good post Royce, encouragement for the day. Thank you blessings Jimeka 🦋 🦔 🐛

RoyceNewton profile image
RoyceNewton in reply to jimeka

Thanks

RoyceNewton profile image
RoyceNewton in reply to jimeka

Thank you

goatgal profile image
goatgal

RoyceNewton Computer issue resolved? Good to see you back.

RoyceNewton profile image
RoyceNewton in reply to goatgal

thanks

Peruzzot profile image
Peruzzot

Great advice! Though I've never bothered to iron socks or underclothing of any kind...I have better things to do with my life. The less time I have to spend on tedious chores the happier I am.

Midgey_Midge06 profile image
Midgey_Midge06 in reply to Peruzzot

Yea i just dont iron ever. If i cant dry it flat and have it be ok i just dont buy it 😁

Peruzzot profile image
Peruzzot in reply to Midgey_Midge06

I'm right there with you. Unfortunately my skin doesn't like most synthetic fabrics, they irritate my skin. With the exception of swim suits almost everything I own is made with cotton. I have some angora wool sweaters that i got on sale discounted heavily. Otherwise i couldn't afford those.

Midgey_Midge06 profile image
Midgey_Midge06 in reply to Peruzzot

Cotton is easy to dry for a min take it out and flat dry it. I used to have stackable flat mesh dryer thingys. Cant find them any more

Allen5280 profile image
Allen5280 in reply to Peruzzot

The only thing I use an iron for anymore (yes I've always done my own laundry and ironing) is those little patches when I get a hole I mg favorite comfy pants! Or anything else I'm not ready to part with just yet for that matter! I just fold or hang mg clothes right out of the dryer and that's as good as it's going to get!

RoyceNewton profile image
RoyceNewton in reply to Allen5280

same here

TracyBelle profile image
TracyBelle

Never go to your Dr without a list of complaints, questions and any information about symptoms (even fleeting ones). You should have someone with you for the first few visits. The Dr will only know there is a potential problem if you are vocal and having a written or typed into your phone list of questions helps you not to forget to tell them during the rush of the appointment. You will have more power over the disease if you take charge of your health as quickly as possible.

RoyceNewton profile image
RoyceNewton in reply to TracyBelle

yes that is the way to go

jackiesj profile image
jackiesj

Wonderful AGAIN!How about starting a book on MS for us all..I will buy!

RoyceNewton profile image
RoyceNewton in reply to jackiesj

Thanks,Maybe one day

jackiesj profile image
jackiesj in reply to RoyceNewton

I have down payment coin!I get a signed book of course!

RoyceNewton profile image
RoyceNewton in reply to jackiesj

If I ever do of course you will.

carolek572 profile image
carolek572CommunityAmbassador

Hey Royce,

You do have a way with words!

Please continue with your most excellent posts as they encourage positive thoughts and dialog. Perhaps a book is not such a bad idea...

Keep smiling,

Carole :-D

RoyceNewton profile image
RoyceNewton in reply to carolek572

Thank you

CathyL82 profile image
CathyL82 in reply to RoyceNewton

I totally agree. You do have a way with words. Thanks a lot for your insight.

RoyceNewton profile image
RoyceNewton in reply to CathyL82

Thank you as well

RoyceNewton profile image
RoyceNewton

Thank you

CathyL82 profile image
CathyL82 in reply to RoyceNewton

When were diagnosed with MS?

RoyceNewton profile image
RoyceNewton

Not really sure 19 - 20 years ago. Do not really pay much attention to the exact date, have to look it up someday, maybe.

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