msERs, NO I do not mean working long hours or running twenty miles. I mean productive in your thoughts. YOU have a little less energy than YOU used to have, so is ironing the socks really the best use of your time. do not burn yourself out and spend a week in bed when YOU do not ned to.
All YOU need to do is think first, do I need to and what might be the consequences if I do it. Pretty simple really. YOU like me are now disabled. It is not what I had planned in my life, and I bet neither in yours. Let YOU in on something. It is,so now YOU have to change and learn to COPE.
I am not suggesting that YOU sit in the corner facing the wall and feeling sorry for yourself. I am TELLING YOU, thank before YOU do things now. Push yourself, but expect that YOU will fail much earlier than YOU used to, but this is very good. It teaches you the limits of your homeostasis box. That is the box that your body now lives in. A normal person may live in a 10 by 10 sized box. Our msLife gives use a much smaller but very mobile box. Somedays our tolerance to heat is low, others it is high. Our energy is high others low.
Imagine if YOU will that 10 by 10 box. Inside i is a 2 by 2 elastic sided box. Some days YOU can push the edges, move the box. adjust and adapt as YOU need. BUT your box is always smaller 2 by 2. That is what YOU now have with your RELAPSING REMITTING ms. You are not any less of a person than YOU ever where. YOU are not incapable. YOU just have to find your box, remembering with our truly mischievous illness that what was today may not be there tomorrow.
ms is a HUGE illness with a little name. It has a lot of body that it can play with, and trust me it does like to play. It is your job to expect the unexpected. adapt to its moves and be line BAMBOO. When it throws its harshest headwinds at you, just bend. Be flexible enough to bend and resilient enough to bounce back when it eases up. To do this, learn about it. Study the medicines, become educated.
Walk into a doctors office having an idea of what they should say, what treatments there are. Do not just be that person they give more pills to. Be an advocate for yourself, because YOU are the one that lays in bed late at night, just YOU only YOU. Be strong and KNOW that YOU CAN YOU WILL YOU DO and YOU DID IT, maybe with a little help, but thats ok.
Royce