The title pretty much says it all, especially when YOU are new to our Journey. I will admit to slacking off on own knowledge as the years have gone by. You do not have to make ms the be all and end all of your life. Some of us have other priorities. That is okay, do NOT beat yourself up that YOU make ms number 3 or 4 in YOUR life.
This is a long generational illness, it will take YOU a long time to get it under some control. Then it will change on YOU and YOU get to start again. There is no winning, just the playing of a game, where the rules are constantly changing. Be like bamboo, strong, yet flexible. Do not set rules in stone to follow. They hurt YOU when they have to be broken. Just know your end goal and do what YOU have to do to get there.
I have said it before & I am sure I will say it again. Only YOU lies in bed at 3 am wondering, only YOU stand in the grocery store as YOUR bladder decides to let loose and flow. I can not be there with you I can just make suggestions, based on my experiences. Beating myself up and yelling at myself really never helps. A shrug and a " will not do that again", until next time, I am a hard-headed man remember :-), is all I need to do.
Be gentle with yourself, learn what YOU must learn, ask what YOU need to ASK. Live this journey, as well as YOU, can & if YOU do not meet somebody else's standard, just remember. It is their standard, not YOURS. Meet YOUR own standards and be flexible enough to change them if that keeps you on the ms path.
Always be gentle with yourself. YOU will make mistakes, we all do, but they do not have to break you, Just bend YOU a little more. Of course not starting your Disease Modifying Therapy will break YOU so take YOUR medicine.
Now get yourself moving, it is a long journey.
Royce
One step at a time.
