Unnumbered post Yesterdays adventure ... - My MSAA Community

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Unnumbered post Yesterdays adventure 23 Feb 2021

RoyceNewton profile image
19 Replies

Beloved ms family. All well and excited about the new day? I am wondering about a new desk so I have more room for my gym, I like the desk I have just a few inches (Centimeters) smaller is all I need. Ahh another problem to think about, what I need is a bigger house.

The important stuff. As "YOU" can tell I survived yesterday,s tube visit. I am quite surprised that the place was a curvy maze. No straight corridors. It went much faster than I thought, only about an hour. It was okay until they put in the gadolinium, I HATE NEEDLES. I warned the tech beforehand and she did her best. It is supposed to be cold, but I could not tell. No side effects nothing. I only took one Valium 5mg so maybe I was just numb. It did feel like it was spinning, but as I looked beforehand I suppose it was just a false sensation.

one hour in the tube and it was no problem, until next year I think. Valium beforehand, a nice sleep afterwards and a Magnetic Resonance Image (MRI) is nothing to be scared of. I think it was loud but I could not really tell. A 3t (Tesla machine is what "YOU" want much higher and "YOU" have to go to bi teaching hospitals. Like most of our life with Relapsing-Remitting ms (RRms), there is little to be truly scared of. Most everything "YOU" will adjust to, given time.

At first "YOU" might be scared and fearful, there is no need for that. "YOU" will given time ,learn to live with this illness and end up having a purposeful life.

Royce ( your ms writer and brother)

anything that ms takes you can learn to live with, give yourself time to learn and believe in yourself

19 Replies
carolek572 profile image
carolek572CommunityAmbassador

So happy that you escaped unscathed and prepared to do it again next year, Royce (Sorry for being overly dramatic but I am being a bit goofy) 😜 I, on the other hand, enjoy my visits to the mri machine, and look forward to it.

Sandydemop profile image
Sandydemop in reply to carolek572

really? carolek572 Why is that?

carolek572 profile image
carolek572CommunityAmbassador in reply to Sandydemop

Because I usually fall asleep when I am in the mri machine. I know, sandydemop1 , I am weird! :-D

Sandydemop profile image
Sandydemop in reply to carolek572

I see some people find it relaxing. I couldn't with all that banging but it definitely goes easier if you sleep through it.

carolek572 profile image
carolek572CommunityAmbassador in reply to Sandydemop

I have trouble staying still because I want to dance to the beats, sandydemop1 :-D

hairbrain4 profile image
hairbrain4 in reply to carolek572

So do I. I start singing my favorite hymn, Amazing Grace, in my head & the next thing I know the bed starts moving & I can hear the tech talking to me.

carolek572 profile image
carolek572CommunityAmbassador in reply to hairbrain4

That is an excellent song to sing, hairbrain4

I usually sing anything *N*S*Y*N*C* related, but I love your song better! :-D

hairbrain4 profile image
hairbrain4 in reply to carolek572

😉

carolek572 profile image
carolek572CommunityAmbassador in reply to hairbrain4

🤗

Sandydemop profile image
Sandydemop in reply to carolek572

I usually pray when I'm in there. pray for it to go well and be over.

RoyceNewton profile image
RoyceNewton in reply to Sandydemop

I guess that is always an option

carolek572 profile image
carolek572CommunityAmbassador in reply to Sandydemop

That is a great time to do that, sandydemop1 :-D

Ruadh profile image
Ruadh

Royce Newton - Gadolinium - iatrogenic unwanted side effects to Gd. It might be an idea to 'fully' check this out. There is an excellent WordPress on Gd; plus much information from specific radiology sites re such Gd side effects; in addition that the EU has removed 4 of the Gd contrast agents from their marketplace : check : AuntMinnie Europe; the online professional radiology journal - extensive information.For my own self. 2013 : Two shots Gd, over six months apart, both slightly different types of Gd = iatrogenic lipodermatosclerosis. Hellish. Hospitalised. Residual damage, permanent. 2021 - confirmed. Permanent.

As for the MRI itself. A total doddle - the after effects - Ho-Hum. Do NOT dive in to Gd enhanced MRIs. End of.

RoyceNewton profile image
RoyceNewton in reply to Ruadh

I think in the last few years my Magnetic Resonance Image tests have not had gadolinium, fine by me, no needles and we know how I feel about needles

Ruadh profile image
Ruadh in reply to RoyceNewton

So. NO 'enhancement'. MRI contrast dyes = Gd. Highly toxic. Many permanent injuries. And there are ways of achieving a good picture without the contrast dyers. Just easy, cheap and thick-headed to use em !

RoyceNewton profile image
RoyceNewton in reply to Ruadh

I did not kno2w that and will make efforts next time to do this. I do not worry about enhancements but I will ask about options next year, thanks

Sandydemop profile image
Sandydemop in reply to Ruadh

Gadolinium used to be standard but due to the long term effects is now only given if the dr. expects to find new lesions, so not for a check up when you don't have symptoms. You have the opportunity to ask for them to skip the Gadolinium or at least discuss why they would feel it's worth the risk in a specific case.

hairbrain4 profile image
hairbrain4

Glad you made it back! My Dr doesn't order contrast anymore unless I am having problems & suspects new lesions. It's not the safest thing to do but sometimes necessary.

Boxofchocolates profile image
Boxofchocolates

Glad to hear it went well!

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