Short Post 15 Nov 2024 Change: G'day my... - My MSAA Community

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Short Post 15 Nov 2024 Change

RoyceNewton profile image
6 Replies

G'day my RRms(Relapsing Remitting ms (RRms) Sisters and Brothers, I hope YOU are all as well as can be expected and had a good night. Mine was good onlygot up once for the bladder and sid not fall over in the gym. Did I say my coffee is tasty I think so it is a very good day so far. Most important the sun is shining and I am not to cold.

Neither YOU or I can cure our illness nut we all can find the happiness in our lives. It is supposed to rain in the next week, so it will be nice for the streets to get washed down a little. That willl be nice.

Have YOU come to terms with you RRms? Are YOU coping with the change it brings about, change in everything. Make your life easier by coming to terms with and anticipating this change. YOU have RRms now, your life is and will be full of change. At least initially, until You manage to redesign your life and habits. Remember your attitude, "this is NOT all bad" just very very different and unexpected, Change what YOU can and expect that as time goes by it will change. Do NOT fight it for YOU will lose. Expect it and adapt, adapt adapt to it.

You CAN have a great life or a miserable life, the choice is yours.

Royce👍

life is good, I am content and YOU want to be aS WELL

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RoyceNewton profile image
RoyceNewton
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6 Replies
MSFlea profile image
MSFlea

"very different and unexpected" is certainly a good way of looking at it! I'm in year 1 of this illness and at the very beginning of learning to redesign things. But then I'm still in the very beginning of figuring out what is what, and working out what can be worked around and what can't.

whwiechm profile image
whwiechm in reply toMSFlea

Very true, and adapting to what we can do and the changes that continue to come with MS. I just got my first electric wheelchair after using a Rollator for 5 years.

MSFlea profile image
MSFlea in reply towhwiechm

How is the electric wheelchair working for you? My friend's dad got one that reclines so he can rest and take naps, and will lean forward and up to help him stand up! I'm envious! 🤩It sounds like an amazing tool to have!

I use a cane when I go out, but in the house only if I feel very wobbly! I keep them everywhere, for just in case! It was a hard decision to make, but I was falling at home, and decided I did not want to fall while out and about (started using them shortly after I was diagnosed)! I'm slowly working on things that help and I started watching other chronic illness warriors on IG to see what tools they use that might be helpful to me. And, it may seem silly, but I started watching some cleaning people on IG, just to see if they used any tools that might be helpful 🤣😀 Mostly I'm in awe of how much energy they have 😂😅 But I did find a few tools that really help me!

whwiechm profile image
whwiechm in reply toMSFlea

I just got it Thursday, but so far, so good. It's a bit heavy, so I'm not sure how to get it in and out of the car, and I may bneed to get some ramps to get out of the house. One more thing to learn to cope with with MS, but life will go on.

MSFlea profile image
MSFlea in reply towhwiechm

Maybe one of those things that attach to the back of your vehicle that lower and raise that you basically drive it onto? And a cover for it, just in case it rains.

Life does go on. The sun will set tonight and rise tomorrow. We will learn, and survive and go on. 🧡🫂I hope this new tool helps you. One thing I did was buy a few different canes, so I could have ones for different outfits. Maybe you could outfit your new power chair to fit your personality. Just a thought. Hope you are doing well today. Happy Saturday. 🧡

whwiechm profile image
whwiechm

Yes, today is a beautiful day, very gloomy out, but I'm still on the top side of the grass and I'm planning on staying there for a long time!

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