Unnumbered post Learn from your mistakes 23 Feb 2021 2

[RoyceNewton]

Family, PAY ATTENTION. If something does not work the way "YOU" want it or had planned it to be, PAY ATTENTION and change your behaviour. This is a very BIG COMPLICATED illness, that we all have. PAY ATTENTION and learn from your mistakes and adjust. I learned that I am claustrophobic, so I took low dose valium and do my Magnetic-Resonance Imaging without a problem, now. I learned that Rebif hurt upon injection so I changed back to Beta. I learned that I may get headaches post-injection. So I took Ibuprofen and ate a meal beforehand. I paid attention to my mistakes. I listened to others then ignored them and made my own mistakes. BUT I always learned. This is not an illness that "YOU" learn in school. "YOU" must experiment and learn yourself. Nobody has the perfect answers just for "YOU", it is way too big an illness for that.

Pay attention, learn from your mistakes and adapt. "YOU can do this ms life

Royce (your ms writer and brother)

Now, go out learn and live your best life

[carolek572 CommunityAmbassador]

I agree with you Royce, you need to constantly adjust in order to find what works for you. Life is too short to not do that. Keep Smiling, my friend

[Sandydemop]

Agreed. Still trying to adjust my food plan for maximum benefit. Food is medicine.

[Tina11762]

Beautifully said. I would also add that if you don’t feel like your doctor is listening to you or is dismissive find a new one.

[tiffortat]

Rebif was my very first DMD. I was on it for several months and couldn’t get past the flu-like symptoms. Even with ibuprofen and acetaminophen, I felt awful every day. I hope you find a flow that works in your favor Royce. Why Rebif?

[RoyceNewton in reply to tiffortat]

Less weekly injections, remember I dislike needles needles

[hairbrain4]

I also agree with you that adjustments are necessary, not just once but sometimes several times for the same problem as time passes.

[twooldcrows]

very informative ....