MS hug after contrast dye?

[NorasMom]

I've had more MRI's than I can count, both with and without, but today's didn't go too well. It was later in the day than usual, so I didn't get my standard afternoon nap.

After the MRI was finished, I had a lot of trouble just sitting up on the bed. It was like my body was frozen in place. In a short period of time, I was able to stand and move around, but I remained rather fuzzy-headed for more than an hour after that and developed a sudden sore throat.

I then spent about 45 minutes in a wheelchair at Walmart, dozing off and slurring my speech during the half-hour ride home after that. I've just been sitting and drinking fluids ever since, but I seem to have a slight MS hug now.

I realize these are all simple things, but should I be concerned about the dye or just chalk it up to being overtired and having my routine disrupted? Should I tell my neuro about it when I see him on Wednesday or just wait and see if it happens again next time?

[Juliew19673]

Tell Neuro and perhaps they can give you a definite explanation. Sounds like your surviving, thank goodness.

[twooldcrows]

wow what did the people that did the MRI say about it at the time ??? i would of called the doctor right away to see what was going on for you said you hadn't had this happen before so i think the doctor needs to know about it now ...good luck hope you get some answers ...be careful...

[NorasMom in reply to twooldcrows]

It was more of a "here's your hat; what's your hurry". I think I was the last appointment of the day, and they just wanted me gone. The radiologist had been quite matter-of-fact, actually rather short, the whole time, and I really think that if I'd collapsed on the floor he would've walked around me and gone home. I'm fine today, but I'll mention it to the neuro when I see him, just in case.

[twooldcrows in reply to NorasMom]

well i hope someone has a talk to him about manners ...wow...yes i think the doctor needs to talk to them ...so glad feeling better but i still would make sure the doctor knows how bad you felt and how this person acted like no problem this was very dangerous you could of got into a car wreck and gotten hurt really bad or killed or others...wow..take care...

[Weaver9]

Why are you afraid to call your neurologist? Let him know or her know. Now.😆

[NorasMom in reply to Weaver9]

Oh, I'm not going to bother him with something this minor. If it had been more serious at the time or continued through yesterday, I would have sent an email to him, but this can wait until I see him on Wednesday. It's not like I'll be getting contrast dye any time soon anyway!

[hairbrain4 in reply to NorasMom]

That's really not minor when you have a reaction like that after an MRI. Your Neuro needs to know right away Incase there are other or more reactions.

[Jer29-11]

Yikes, that sounds scary! I’m sorry this happened to you! Definitely mention to your dr at the next appointment. Are you better now? How long did it last?

[NorasMom in reply to Jer29-11]

The worst of it was only an hour, and I was functional during that time once I managed to get upright in the first place. I just didn't feel right the rest of the evening, kind of like my mind and body were moving half a beat behind reality. I couldn't even describe it as being lightheaded; it was just plain old weird!

I've since learned that my non-biological aunt can't use contrast dyes any more because of similar problems.

[Jer29-11 in reply to NorasMom]

Hmmm, interesting. Maybe you’ve developed a sensitivity to contrast? I’d for sure put that on the list of questions to ask your dr at your next appointment!

Also, I’ve had that same feeling before during my “first” relapse that led to an MS diagnosis. It’s not dizziness or lightheadedness, but a weird mind/body disconnect. I wasn’t able to explain it either! Glad you’re ok and keep us updated on what your dr says ❤️

[itasara]

I read something online couple years ago that the dye stays in your body and in your brain for a long time. I don’t know what that means over the long haul . I stopped getting die with my MRIs which I have annually. My neurologist who is an MS specialist agreed it would be OK. If I were to have some active lesions or maybe major setbacks then an enhanced MRI would show up the details better, but I have not had an active lesion ever that I know of since I was diagnosed and even then all my lesions were not active so most likely I developed this long before I was diagnosed at age 57. I’m 73 now almost 74 and I’m off medication for about three years . So far so good; I never know what’s gonna happen going forward but I’m not planning to have more MRIs with DYE unless it’s absolutely necessary. Everyone’s different so I suppose you need to talk to your neurologist about it and go online and see what you can find about how the dye affects people so you have something in hand to discuss.

[itasara]

PS. I put in this title on my browser, “what is the effect of dye used in MRI of the brain?” And a whole bunch of different articles came up so just wanted to share that with you.

[Tazmanian]

Talk to your neurologist, sooner not later

[BlanketTime1]

i hope you were just a bit under the weather from the disruption and stress of the mri, but i would contact your neuro. i hope it gets better soon.🤗

[pamgarner]

well, an instant sore throat can be a sign of an allergic reaction,call dr. and ask.and i do know a few folks that can't do the dye,check it out,wish you the best

[NorasMom]

Saw the neuro today and got a clean bill of health! He doesn't want to see me for 6 months, and no more MRI's until next year. He'd like to put me on half-doses of either Gilenya or Aubagio but said he wouldn't push it as long as I remain stable.

As far as the dye issue, he said to just remember that for next time, and they'll give me some steroids first.

I'm actually feeling better today than I have in months! I didn't use my cane at all, managed to walk through Sam's Club with a cart, and then came home and spent half an hour weeding my mangy garden. Now you watch -- Tomorrow I won't be able to move!