ocrevus I'm new here

[geoghegan]

will be starting ocrevus within the next 2 weeks...what can I expect...and has anyone seen much improvement?

[ssdw1958]

I have gone through two doses of Ocrevus my next dose will be in April. I didn’t have any problems with the medicine when the doses everything went well. Well I did have a problem when swallowing a pill I believe it was the Tylenol the pill was large and it scratched my throat going down my throat. And while having the Ocrevus I coughed and a nurse that wasn’t even my nurse stopped the Ocrevus when I told them it was from the pill scratching my throat but that was my only problem so for the second dose I asked for the pill to be cut which was done and that was fine. After the first dose no problem. The second dose latter on that night my legs felt like rubber but by the next morning I was doing well. I really am not sure if anything is working, my legs because where I live has been extremely cold, so I can’t say if this medicine is working. But I will see after my next dose. I Spoke with my neurologist and he said that this is how it’s been going for a lot of people. So we’ll see after the next dose.

Spoke with my neurologist and he said that this is how it’s been going to a lot of people. So we’ll see after the next dose.

Good luck

ssdw1958

[Iona60]

My neurologist says not to expect any improvements until after the 6 month dose. You may want to look for Fancy's post from a few days called ocrevus poll.

Hope all goes well.

[Fancy1959]

Welcome Geoghegan, it's Fancy1959. We are glad you found this special place. You are safe here to ask questions, voice concerns, or simply speak to others who truly understand what you are going through. This chat room also can boast having some of the kindest, most caring, and compassionate people I have ever met. The more you tell us about yourself and interact with us the quicker we will get to know you and you will get to know. I am certain we have much we can learn from each other. You need to find a Post from jimeka. She is our birthday club ambassador. You need to make certain you give her your birthday so she can sign you up for our birthday Club. Then on your special day, as families are want to do, we will celebrate the day with you.

Now on to your first question that was concerning ocrevus therapy that you are about to start. Please check out the post labeled ocrevus poll and you will find the results a half a dozen individuals have experienced while taking ocrevus. Make sure you put down your information in the post too and let us know what happens when you get your first infusion. I plan to update the post twice a year so we can keep track of each other's results and compare our improvements hopefully. So please stay in touch and stay connected to the ocrevus poll so we can accurately compare results.

I look forward to getting to know you better. Until we speak again please take care. And remember that together we are stronger! Fancy.

[Momjules]

I also may be starting this med and will look for info on this.

Thanks!!