I'm new here: I got diagnosed with MS... - My MSAA Community

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I'm new here

24 Replies

I got diagnosed with MS after having a relapse with full body nerve pain and crazy fatigue a year ago.

Started taking Ocrevus twice a year and I'm doing better except for fatigue that's better but still awful.

I am doing online graduate school in social work and I'm pretty excited to help people in the future.

I love going out to eat and watching movies.

Looking forward to meeting you all! :D

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24 Replies
Royjr profile image
Royjr

Hello

in reply to Royjr

hello :)

Peruzzot profile image
Peruzzot

Welcome to the group. Good luck with the school. We're here for you.

in reply to Peruzzot

Thanks that really makes me feel better.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi and welcome! Just keep the crazy nerve pain at the door!🙄 Sorry about your fatigue! Talk to your PCP about it! There are meds you can take for that Hidden 😀 They are my life saver! 😂

Have a look around and jump in anywhere! We are a pretty friendly group!

What kind of movies do you like?

🤗💕

J🌠

in reply to Jesmcd2

Comedy and romance- you? :)

ssdw1958 profile image
ssdw1958

Nice to meet you.

Fancy1959 profile image
Fancy1959

Good evening unhappylife23 and welcome to our extended family from Fancy1959. We promise to give you a safe place to come and ask questions, voice concerns, or simply speak to someone who truly understands what you are going through. This will be done by some of the kindest most caring and considerate people you have ever met.

I'm glad you have found this chat room and overall you seem like a very positive person and yet you're name says mountains about your psyche and where you're at right now. I have to point out to you that with MS we do have a future. It might not be the future we envisioned even a few years ago but none the less it is there. You will go into social work and help others with the unique insight that only someone with a chronic illness and disability can have. That will open up your vision immensely and you will understand so much more than the average social worker does. I also would like to point out that believe it or not we are very lucky to have MS. I know it's hard to believe but I did say we are lucky to have MS. It could be so much worse than it is and we need to thank our lucky stars daily that we have MS. Our glass should always be half-full not half-empty. To give you an example of what I speak of is that I have had two sister-in-laws in my life. The first sister-in-law was diagnosed with pancreatic cancer about 10 years ago. We lost her just over a year after she was diagnosed. My second sister-in-law was diagnosed with breast cancer about 7 years ago. We lost her just about 2 years after she was diagnosed. So think long and think hard about being very negative about having MS. Will MS change your life, sure but we humans are very adaptive creatures. The best thing you can do is to beat MS by adapting your life around the unique issues this monster will heap upon you. The rest of us are fighting the same battle you are. See now I've become long-winded again I'm sorry but we're glad you found us! I can't wait to get to know you better. The more you post and reply to other post the quicker you will get to know us and we will get to know you. I am sure there is much we can learn from each other. Until we speak again please take care and remember together we are stronger! Fancy.

in reply to Fancy1959

Thanks fancy! Just a few symptoms bothering me but I understand we do have a future. :)

Linda3579 profile image
Linda3579 in reply to Fancy1959

Thank you Fancy, that is a very good reminder for all of us. I am sorry you lost your sister-in-laws. 🙏 Linda

in reply to Linda3579

Yes sorry for your loss :(

Jazzyinco profile image
Jazzyinco

A very warm welcome unhappy, we R here for U! To make your life happier!😍😁💘💌💖💗💓Blessings---Jazmine 💜 🌹Rose

pamgarner profile image
pamgarner

Hello!,This is a great place, I look forward to the new info everyday,and sure nice we are in this together and we can lean on each other. Pam

Diva1976 profile image
Diva1976

Welcome unhappylife23!!

Elizt3 profile image
Elizt3

Welcome! I’m glad you found this site. I’ve only been on it a few months and it’s been impactful for me. I hope this forum makes your life a bit happier!😀

bxrmom profile image
bxrmom

Welcome to this wonderful group unhappylife23, sorry for the reason. Glad you are here. This a great place to share what's going on, vent when you need to, ask questions if you have them. Good luck in your schooling, I'm sure the online thing is easier than when I was doing some of the classes 14+ years ago. Look forward to getting to meet you.

Jessie

Juliew19673 profile image
Juliew19673

Hi and glad you found this site. I've been on just a few months and it's been so helpful!

Linda3579 profile image
Linda3579

Welcome! I am also on Ocrevus. Wishing you a happy life.

Linda

hairbrain4 profile image
hairbrain4

Welcome! Glad you found this site. It's a great place to find a pick-me-up when you are feeling down, or need to vent. Sometimes you just need some answers to the questions that run around in your head. We are here for each other!

Doubled51 profile image
Doubled51

Welcome to our world Hidden . Hopefully we can change that name to happy 123. We are a pretty upbeat bunch here. Just jump right in anytime.

Donnie

lbenmaor profile image
lbenmaor

Good luck in graduate school! Our group allows you to express your emotions and ask questions.

It's a great group to belong to.

Leslie

Buddy2009 profile image
Buddy2009

Welcome to the group, I have only been here a couple of months, every one shares about their MS journey but they also share about other things going on in their lives, family, friendships, vacations, hummingbirds,MS has not stopped us from living, maybe slowed us down a little, don't give up Keep On Truckin !

jackiesj profile image
jackiesj

Welcome, a wealth of love, concern sometimes laughter and info..sorry you are ill but welcome welcome!

Lakenya32 profile image
Lakenya32

Hello There!!! I am also going back to school online for my Masters in Social Work. It's kind of hard with me trying to keep up with the class due to the side effects with MS. I had to contact my academic advising to see what options are there for me. They had recommended for me to contact the disability department with the school. It took them a while for them to respond back. However, the were able to give me accommodations while I complete while I am in school. They have given me extended time to turn in my work. Also, I've also stayed in contact with my professor and let her know about my health issues and why I was falling behind in my work. She seemed to be sincere and understanding. In this class she assigned everybody to do a group project. We had to do a power point presentation on a specific topic in a webinar and submit the power point presentation in the class room so it can be graded. My group topic was about how social workers deal with spirituality and religion. During this course I had gotten really sick and was not able to participate in the group as I wanted to do. I reached out to the other two people in my group 2-3 weeks before the assignment was due to see what I can do on my end since it was a group project. I also explained to them my health issues and the reason why I was not available. They didn't show any kind of empathy towards me at all. It made me feel really bad. One of the ladies in the group sent me a rude email saying how she got a life and she got other things to do and demanded I send my portion of my work the next day by a certain time or she would not include my work in the group project. When I emailed my group and cc'd my professor in on the conversation of the email to show her I am making an effort to participate in the group. I stayed up all night until after 5:00am researching and trying to complete the work. I had emailed my group the work I completed but none of them responded back to me. I turned in my work to the group within the time frame they had given me. I didn't know what to do. I had reached out to my professor again about the issue. She told me she saw the email that I sent out to my group members. She also said that the other two people in the group emailed her their presentation without my work included in it. My professor advised that I could present my work that I done alone with the work I had done. I had ended up doing the assignment by myself. It made me feel really bad that my group left me out. However, I tried my best and I was able follow through and got my work done. I didn't think it was fair and was very wrong for what they had done. Anyways, I am glad that group project is done and over with. Now I can move forward. I wish you the best on your journey while you are obtaining your MSW degree. Take Care!!!

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