Hello, I'm new here....

[Notorious_VMC]

Hi everyone I am new here and would like to introduce myself. I am 58 years old and have Secondary Progressive Multiple Sclerosis. I have also had an operation to fuse C5/C6 (in my neck) following disc degeneration and nerve impingement. I am not on any medication and my main problems are mobility and spasticity. I am mainly looking to see how others cope with everyday living.

[Morllyn]

Welcome @Notorious_VMC ! Sorry you have MS but glad to meet you.

[Iona60]

A big welcome to you Notorious_VMC ! What a great smiling picture. We are all coping as best as we can with our unique challenges. We love to share our ideas and celebrate each other's accomplishments. Just jump right in.

[Jesmcd2 CommunityAmbassador]

Hi Notorious_VMC Very nice to meet you! So sorry it's for this monster. I think that's one of our big questions, how to cope. I guess my question is what is your biggest challenge that we can help you with? Me? I'm still trying to come to terms that l have this monster, and how it affects my life. I was dxed only 2 yrs next month. I know it's not along time for some, but it's a lifetime for me.

As you can see we talk about pretty much anything and everything here, but most of all Support each other! So please jump in at anytime!

~Helpful Hint~ If put an @ in front of the person who your addressing, they will be notified. IE @ jesmcd2 *With No Spaces*

Jes🌠

[SueAB]

Welcome, @Notorious_VMC, I never, never thought I'd say this to someone else with MS, "But you look so good!"

[jimeka]

Hi Notorious_VMC, I am 60 with PPMS, and I too have had an ACDF of C5/C6 I call mine a hula hoop which is a potato chip here in the U.K. Like you I don't take any medication for the ms, I just handle each day as it comes. As regards the spasticity and the mobility, I have a walking stick, and I use a Walker which really helps walking faster, I feel more secure. You certainly look happy in your photo. Blessings Jimeka

[erash in reply to jimeka]

jimeka

I think we need an English to English translation dictionary 😂😂😂

Potato chips are hula hoops? So what are hula hoops?

[Jesmcd2 CommunityAmbassador in reply to erash]

jimeka l second erash 's question lm more confused now. And that's very very very scary in my little world. 😵🌠

[pmbevac in reply to erash]

Hula Hoops - its a British snack food that look like very wide, thick rubber bands about an inch cross, maybe a bit less. Can't remember what the taste like. As an American having spent 30+ years in the UK feel free to hit me with those translations - just don't expect me to be able to tell you why colour & centre are spelled the way they are!

[erash in reply to pmbevac]

pmbevac regarding spelling differences...we (USA) are the ones who bastardized (excuse the French 😉) the language, right? It's English, after all 😅

[pmbevac in reply to erash]

ummm.. You would think so.. we had so many "discussions" (usually over pints of beer) about the evolution of the Queen's English.. The American view is that what we speak in the USA is English perfected... You can imagine the British point of view. We had a lot of fun with it.

[erash in reply to pmbevac]

pmbevac if it was over pints of beer 🍻 you must have had animated discussions --sounds like fun 😊

[pmbevac in reply to erash]

Yeah, it was a lot of fun, very good natured banter. I really miss the people there, the pubs & English ales.

[Fancy1959]

Hello Notorious_VMC, it's Fancy1959 and i am glad you have found us. You have found a safe place free of judgement and full of compassion. This chat room is full of some of the kindest and caring people I have ever met. Come and ask questions, voice your concerns, talk to others facing the same issues as you are. i am also 57 and last year they moved me from PPMS to SPMS. So, we are like mirror images of each other. Start making post, asking questions, and upporting others and we'll get to knoe you quicker! Welcome aboard! I would like you to remember one thing, "together we are stronger!"

[greaterexp]

Notorious_VMC ,

Welcome to a great place filled with wonderful, supportive folks! We are glad you found us!

[erash]

Hi Notorious_VMC Welcome!

I'm 58, have SPMS

I cope via positiveness, staying active, a wonderfully supportive husband, this forum and likely mostly denial that keeps me trying to achieve all that's possible.

So glad you've joined us!

[postmanjim]

Welcome Notorious VMC aboard the MS Bus from the Sunshine State

[Jesmcd2 CommunityAmbassador in reply to postmanjim]

Well hello postmanjim , why do l get the feeling that you are trying to sneak in?☺

[postmanjim]

Well hello Jesmcd2. Not sure. Maybe you should ask Kyle.

[johnMSAA Partner]

From everyone at MSAA and everyone here in the My MSAA Community online family, we welcome you to this peer-to-peer network, Notorious_VMC ! No doubt in your few days on here you have already seen a variety of examples about living with MS from our great followers.

Please continue to tell us more about yourself, ask questions, share stories - you name it.

- John, MSAA

[AngieRowe]

Hi Notorious ,

Welcome! I am 64 with RRMS, I also have difficulty with walking and am on walker mostly full time. I have fusion and added bones in C3-C5. And I have lesion on C2, which has some abnormal bone growth.

I have been diagnosed since March last year and am on copaxone. I feel myself getting worse so not sure what is going on, I will see dr in March.

And I agree you do look good, MS and all!

Angie