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[alleynyberg]

My name is Alice Nyberg. I was diagnosed in 1994 with MS. I have been on Betaseron and Gilenya. I am currently on Tysabri for the past two years. My neurologist is suggesting that I go on Ocrevus? Anyone out there on Ocrevus? How is it working for you?

[Hidden]

I'm in same situation but I'm opting out of meds all together because of the risks and side effects of Ocevus. I'm using The Wahls Protocol. I've been on the diet 2.5 months, lost 40 lbs , my symptoms are reduced , and my fatigue is almost non existent . Look up Terry Wahls MD on YouTube. Good Luck

[alleynyberg in reply to Hidden]

WOW, that's fantastic. Just think of the money you are saving.

[Hidden in reply to alleynyberg]

I'm not saving any money. My insurance pays 100% . I'm saving myself infusion time & saving myself from the deadly side effects

[SometimesCrazy]

I too want to start the Ocrevus! It seems the doctors in my city have decided not to opt in? So I am going to have to do the Tsyabri. I contacted other doctors and infusion centers and they are being very tight lipped about this.

[alleynyberg in reply to SometimesCrazy]

Why do they have to make it so difficult for us!

[Jesmcd2 CommunityAmbassador]

Hi alleynyberg , Hidden and SometimesCrazy it's always nice to see new faces😊 So Welcome.

We do have some people here on ocrevus, and have been very forthcoming about it all.😊

I haven't heard anything about things being tightlipped anywhere sometimecrazy?

[Hidden in reply to Jesmcd2]

Thanks so much for the welcome

[WAshingtongirl]

Welcome alleynyberg , Hidden and SometimesCrazy ! We look forward to getting to know you better. Ask, vent, share and encourage...oh, yes, and laugh...we do a lot of that here. 💕

[Morllyn]

Not on any of those but welcome to the group!

[Fancy1959]

Alleynyberg, it's Fancy1959 officially welcome you to this awesome extended family that we call our chat room. We are glad you have joined our extended family and can't wait to get to know you better. The quicker you reply to post and make posts of you on the quicker we will get to know you. There is much we can learn from one another especially about Ocrevus. Many of us are in the same boat you are where we're waiting to get started on it. We have one or two members already on it and so far their response to the new therapy has been mixed.

Remember to give us your birthday so we can enroll you in our birthday club. It's a small Club I started so that we can send you birthday wishes on your special day just like any family would do. You have found the safe place and feel free to ask questions and voice concerns all you like. This chat room is full of very compassionate and caring people and we'll be happy to answer everything they feel comfortable answering. Sometimes it's just nice to be able to speak to people who truly understand what you are going through and who are there for you if you need a shoulder to lean on. So here we are lean away and let us know if we can do anything at all to help you along your path with MS.

[alleynyberg]

My birthday is July 3rd.

[WAshingtongirl in reply to alleynyberg]

Thanks, alleynyberg , we'll pass this along to jimeka , our fabulous keeper of the birthday book. 💕

[jimeka in reply to alleynyberg]

Alleynyberg, hi Alice, welcome, I wondered if you would be so kind as to tell me what your interests are. Nice to meet you, blessings Jimeka 🦋 🌈

[alleynyberg in reply to jimeka]

I love to watch the Twins, Wild and the MN Gophers hockey. I love spending time with my family and friends.