Ocruvis 1st dose: Well my adventure... - My MSAA Community

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Ocruvis 1st dose

SlmHarris profile image
9 Replies

Well my adventure started. I went last Thursday for my first dose of Ovruvis, did not receive it. After at least 15 pokes to get an IV, the nurse at the fusion center was unable to get it set. She said I needed to go home and drink lots if water, come back this Monday. I did what she asked.

I went back Monday morning very hydratedabd she could not set it. I am very hard to set an IV. I told her this last Thursday. My veins are tiny, roll and blow easy. I guess she thought she knew everything. She could not set an iv monday. I had decided she had 3 sticks before I stop her. She stopped herself. Got someone else. Boom first try IV set.

My MS Dr orders was 1 Tylenol, 1 benadryl and 125 mg of IV solunedrol before infusion.

Everything went well. It took 4+ hours. I had trouble sleeping that nite due to the steroids I'm sure. Tuesday I was feeling fatigued, but not terrible. Today Wednesday 2 days after infusion I felt good when I got up. Went with daughter in law to run a couple of errands. I am out of gas. I am in need of relaxation. My arm is tired of typing this.

I do not feel any plus or minus from the infusion. My understanding it takes 3 to 6 months to feel the affects. I go back Sept 4th for another dose. Then ever 6 months.

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SlmHarris
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9 Replies
Royjr profile image
Royjr

Good luck and keep us informed.

rlh1974 profile image
rlh1974

SlmHarris Keep us posted! I am so interested in this! Being I have PPMS. But like a car, I never buy the first model year! Praying that it works wonderfully for you!!!!

Love you all!

Rob

SlmHarris profile image
SlmHarris in reply to rlh1974

Thank you so much Rob

ssdw1958 profile image
ssdw1958

I am also a hard stick but I'm glad you got it good luck to you

WAshingtongirl profile image
WAshingtongirl

I cringed when I read about how many times you were stuck, SlmHarris . I'm so sorry. I go through the same thing. I hate getting stuck more than anything else. I'm happy the other person was able to get your IV going and that you are doing 'okay.' Maybe you can request that person the next time. Rest up. Praying the Ocrevus shows some improvement for you after some time. Thank you for keeping us informed. 💕

SlmHarris profile image
SlmHarris in reply to WAshingtongirl

Thank you so very much!

dianekjs profile image
dianekjs

SlmHarris , ouch, so sorry getting the IV in place was so difficult, but congrats on completing your initial dose. I'm glad that you're aware that it takes some time to start to work, patience is important with this type of treatment. Keep us updated on how you're doing and best of luck to you. 😊🍀

Yooper profile image
Yooper

SimHarris: Hope and pray it works well. It's been almost a month since my second infusion. I feel okay but still weak and fatigue fairly quickly. Keep us posted.

SlmHarris profile image
SlmHarris

I will keep y'all updated.

I wish you the best of luck

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