HI! Glad to be Here!

[wolfmom21fl]

HI! I was Dx'd in 2015 @ 57. took a long time. i am about to go on 4th medication. now SPMS. I am slowly losing my peripheral vision but am hopeful this new med will slow it down. I have found my calling in creating beautiful wire art and jewelry & to lose my vision would be devastating. Antone else get a late DX & fast progression because of it? I can't help think that all the years it took to get to a DX has allowed the disease to do so much more damage then it would have. It's heartbreaking

[Jesmcd2 CommunityAmbassador]

Hi wolfmom21fl welcome! Although I wish it was under different circumstances.

4dmts! What one are you on now?

You will have to share pictures of your jewelry! We love pictures of crafts and things ppl make!

I hope you make yourself at home! 🤗💕⛄

[wolfmom21fl in reply to Jesmcd2]

I am about to start on Mayzent.. i am seeing the cardiologist on Tuesday to get the final clearance to start it.. fingers crossed.. that is the last piece of the puzzle.. i have been on Texfidera, Tysabri, and Aubagio...

[wolfmom21fl in reply to Jesmcd2]

Where do i post pictures?

[Jesmcd2 CommunityAmbassador in reply to wolfmom21fl]

When you go to make a post, it will have a spot to upload a picture! 😁🤗💕⛄

[bxrmom]

Welcome to this wonderful group wolfmom21fl Can't wait to see some of your art. Sorry to hear that it took so long to get a diagnoses. I was dx in 2006 after my vision suddenly went blurry on me. I have been on both Copaxones (20mg & 40mg), currently on Tecfidera, and may switch again after seeing my neuro in Feb.

Looking forward to getting to know you,

Jessie

[greaterexp]

Welcome! We all look forward to getting to know you better and see your artwork. This is a great place for support and encouragement, as well as information from those who understand.

I think there are many here who were diagnosed later in life - one was 70! I was diagnosed about 3 years ago and am 60 now. I think many of us wonder how things would be if we could have been diagnosed and treated earlier, but we are where we are, I guess. When I had the CIS over 20 years ago, there was no treatment.

Don't be shy about sharing your jewelry pictures. We enjoy seeing the results of the talents of others here.

[kdali]

Welcome!

[Peruzzot]

Welcome to the group! As others have already said...post the artwork. 😎 we've got lots of talented people here.

[Amore55]

Welcome! I had my first very severe symptoms in 1990. Went to about 25 doctors and none tested me for MS! They checked for everything else. I continued to decline, finally I got hooked up with a great neuro in 2006, barely moving. In less than 24 hours they had done an mri and lumbar puncture and said it was a most definitive diagnosis. My spinal fluid was full of the bad ms cells no one wants. So, yes, I do believe if I had it properly treated earlier I would be better today. I am going to be 59 next month and have PPMS. Glad to have you to chat with! Love, Kelly

[mm1527mm]

Welcome to this great group! Would love to see your jewelry!

[rjoneslaw]

welcome

[MaryAZ]

I’m right there with ya! I started having walking issues in 2012. In 2014, they thought it was peripheral artery disease so I was put under to remove the blockage that didn’t exist. I’ve had many cortisone shots in my knees, hips and back due to osteoarthritis so I’ve seen many doctors. The thought of MS didn’t occur until after I had a bad, bad fall. The orthopedic doctor I had been seeing ordered a spinal and neck MRI. Fortunately, I got a written copy of the report which identified suspicious lesions, possible MS. The orthopedic doctor wanted to do a spinal fusion. When I asked about possible MS, he said we didn’t want to go there. Well, I did. I never went back to this doctor again.

I saw a neurologist a few months later who ordered a MRI of the brain and lots of blood work. Results confirmed MS in February 2017. I was 60. Didn’t need a spinal tap. So, I started the shots for RRMS. My walking kept getting worse and other issues, so I went to Mayo Clinic. Based on the MRI’s, the doctor agreed with the MS diagnosis but their diagnosis was PPMS. Explained a lot but hit me for a big loop. Up until that day, I was working full time. After that day, I applied for short term disability and went through tons of tests at Mayo. I subsequently applied for SSDI and was approved first time. I’m fortunate I worked for a large company that offers long term disability (also approved) and can continue my benefits through my full retirement age. However, I will be eligible for Medicare in June and I won’t know until I get my Medicare number what affect that will have on my benefits. Right now, I can continue to go to Mayo. They are amazing. I’m glad I didn’t know until I was close to retirement!

[mrsmike9]

I was diagnosed in 2014 at age 55. My vision has not been a problem and once I was diagnosed have been fairly stable. But everyone is different with their experiences.

Do show your art! We love to see things people do! I am sure your art is helping your fine motor skills going. That is why I started my art was to help my fingers. Didn't expect people to love it so much!

[ahrogers]

Welcome to our group!!

I was diagnosed at age 45. I had symptoms for less than a year but already had more than 10 lesions in my brain and several on my spinal cord. I didn't go to the doctor initially because my symptoms only happened if I exercised for more than 45 minutes and had changed my exercise routine to 30 minute at a time so I wouldn't have symptoms. I am on 3rd dmt. Not sure that getting diagnosed any earlier during that year would have mattered much but will never know.

I hope Mayzent works well for you!