Aaaaahhhh! Help!: I have been in such bad... - My MSAA Community

My MSAA Community

9,440 members21,225 posts

Aaaaahhhh! Help!

Amore55 profile image
18 Replies

I have been in such bad shape that I have had to use my wheelchair quite a few days lately. On my “good” days I help pack and move. Well, today it has all caught up with me. I did so much before noon that this afternoon my legs just would not work at all. I mean it was like I was paralyzed. Now tonight I am typing this thru “gray” vision. My eyes hurt terribly and I can just barely see. Such is life. I will keep on fighting. Love to all, thanks for letting me vent, Kelly

Written by
Amore55 profile image
Amore55
To view profiles and participate in discussions please or .
18 Replies
Fancy1959 profile image
Fancy1959

Kelly.....Fancy here! Be careful! This last update is not making me very happy with your current plan. It looks like you're being used all over again. Can't you call in a favor from all the kids that live around you and ask them to help you for one day to finish cleaning out the house instead of you doing it the Lone Ranger style because that jerk that is divorcing you doesn't seem to understand you can't do it and you shouldn't do it by yourself! Once again I say it looks like you're being used again and it makes me very unhappy to see you in such a state. Get ahold of me when you can. Fancy.

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Get lots of rest and take it easy, go slowly with the packing and take lots of breaks. Please!

SueAB profile image
SueAB

Kelly, You are having a hard time right now and you certainly do not need you MS to roar.

Take some down time to regroup before you do some permanent damage. Sending good thoughts your way!

greaterexp profile image
greaterexp

It’s understandable that this overwork and emotional trial is taking a toll. I wish things were different, but I’ll pray you find the wisdom to know when to stop and rest. I sure hope you’re getting plenty of help.

Come and vent here where we all care about you.

kdali profile image
kdali

Love, are you relapsing? Have you called in about your new/worsening symptoms? Is someone there to check in on you?

Amore55 profile image
Amore55 in reply tokdali

kdali I am sure I should know this, but I have PPMS, can I still relapse? I may have known the answer once, but have forgotten it! Thanks!

kdali profile image
kdali in reply toAmore55

I should know too, and I believe the answer is no. Sounds like you are severely nap and relaxation deficient. How are you feeling today? Your vision? Mobility? Worried about you 😘

jimeka profile image
jimeka

Kelly, you are burning yourself out and the only one who is benefiting is the ms. Stop what you are doing, admit defeat, ask for help. Tell your soon to be X to get a grip, and help. It’s his fault that you are both in this situation so until you get the divorce papers through, you are still his responsibility. Tell him to take a long hard look at you and see what it is doing to you. Please keep in touch, we all care on here, there isn’t one of us who wouldn’t drop everything and come and help if we physically could. So hang on, find that inner strength, and relax, all things work for the good of those that love Him, 🙏 blessings Jimeka 🤗🤗🤗

goatgal profile image
goatgal

Amore55 Of course you are eager to get into your new place and make a fresh start. But, dear Kelly, if you work yourself into a state of collapse, you risk everything! Ask for and accept help. If necessary, focus on just the most important...as if you were evacuating ahead of a hurricane or a wildfire. Take what is vital, your ID, your animal companions and your meds: almost everything else can be replaced. Slow down, breathe deeply, and take care of you. Remember that balloon scan soar when ballast is tossed from the basket.

Amore55 profile image
Amore55 in reply togoatgal

goatgal I did have the mediator put in our contract that I am not supposed to do any more of the actual moving. But if I don’t do it, it will be next summer before it gets done! I have some of my kids coming to help, so that will be a relief. We have an agreement in our contract that the home must be listed by Sept 19. And that would be this year LOL😆! Ireallylikewhatyousaidabout theballooncan soar when ballast is tossed. I simply must remember that. Thank you for writing, my friend. I miss you. Will get hold of you soon. Love, Kelly

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

😡

Amore55 profile image
Amore55 in reply toJesmcd2

Hey Jes, I think I know what kind of thoughts you are thinking! And if looks could kill, my soon to be ex would be in trouble! It’s okay, Jes. It will all be over soon and I will be settled in a cozy home with my doggies, maybe I will get a kitty (I doubt it)and I will have a wonderful autumn and winter when it is not 100degrees every day. Thank you for caring Jes. Will get hold of you later today probably. Love you, Kelly xx

Jackjosh profile image
Jackjosh

That's all we can do is fight

FearlessMsMimi profile image
FearlessMsMimi

Rest my friend, and pace yourself.

Morllyn profile image
Morllyn

Vent on, sounds like you need it!

bxrmom profile image
bxrmom

Amore55 I'm glad some of your kids are going to be coming to help you move, that will be a big relief for you. For now, REST! I can't believe your soon-to-be ex won't help you move out of the house :( Gentle hugs to you my friend. Stay in touch when you can.

Jessie

Iona60 profile image
Iona60

Sept is a long way off. Take a few days to do nothing but take care of yourself.

BigMar7 profile image
BigMar7

I totally agree with Iona60, After a few days rest you will recharge and get back to work dreaming of your own place! 😀❤️

Not what you're looking for?

You may also like...

Help- Ocrevus with spms?

Ok, this may be a long post because I need to vent and sort through what’s going on. Background:...

Need Help

Hi Friends, I would appreciate your encouraging words tonight. I found out I have another relapse...
nicoly3467 profile image

Unusual Bonus

About 3 months into my diagnosis, I noticed the toilet seat being in the down position one night...
greaterexp profile image

Itchy Palms

A few days ago the pad furtherest (I know, probably not a word) away from my thumb, on my lower...
Morllyn profile image

Gilenya help

Update. Got a call today from Novartis. They got my paperwork. But, apparently you have to go...
Kath55 profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.