Never give up! Never stop fighting! Never give into this fire - breathing monster called MS!

[Fancy1959]

Hello everyone! I'm Fancy 1959. I am new to this site but not new to MS. I am in my 15th to 20th year of fighting this MS monster and over the past year I have slid toward PPM form. Until four years ago I was blessedly ignorant that I even had MS. I was an athletic, non stop Mom of three sons who loved the outdoors, spelunking, rock climbing, rapelling, backpacking, horseback riding, whitewater rafting, and anything else I could get into. Oh, looking back I had symptoms but I kept making excuses for them that they where a normal part of the aging process. But then MS took my bull by the horns so to speak and knocked me flat on my back. Was I scared, you bet. Was I mad at the world, you bet. But that's okay. Information helped me to fight my fear down to a manageable level. Support from my family, doctors, friends, and this rapidly expanding MS community helped turn my anger away from the world and toward this fire breathing monster called MS! Never give up! Never stop fighting! Never loose faith that the next new therapy developed might be the one that cures your MS!

[KKlynch5096]

Wouldn't you call that Secondary PMS?

[Fancy1959 in reply to KKlynch5096]

IT's a fine line that separates SPMS from PPMS. The complexities of MS differ in each individual that has MS. Through physical therapy and a lot of work on my own I was improving quite a bit with my MS last year. Then I became ill with a secondary chronic rare genetic disease and my MS has steadily declined ever since.. I'm not seeing any plateaus. I'm just experiencing a slow and steady worsening of symptoms. I pray that fixing, hopefully, my genetic disease and becoming approved for one of the new therapies coming out the first of next year can stop and/or improve my MS's downward spiral I find myself in. Like the old saying goes, "You call it potatoes I call it pottoes". The labels we put on our MS's stages isn't important. What is important is that everyone affected by MS needs to remember not to give into this disease without a fight. Together we are stronger and we can do amazing things!

[jburke665]

I love your attitude and I have the same one. If it knocks you down, pick yourself up and keep going. I was 44 when I was diagnosed but could go to my early 20s when my symptoms first started. Like you there was always a reason that I had problems or couldn't do something. I really think that we all could say that.

My new motto is: That's life with MS. No broken bones or blood so just pick yourself up and keep on going.

[Fancy1959 in reply to jburke665]

Until they figure out how to beat this monster what else can we do. Some days it does get me down. But most time I'm just to dog gone stubborn not to get back up and pick myself up and try to do a little more. Of course often times that's after I take a ten-minute break. But that doesn't matter I keep going. We are and we truly have to be MS Warriors. Fight on everybody, fight on!