Hi everyone πŸ‘‹: I'm new here but not new... - My MSAA Community

My MSAA Community

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Hi everyone πŸ‘‹

mhansenm1 profile image
mhansenm1
β€’26 Replies

I'm new here but not new to MS. I was diagnosed in1990 and been through the gauntlet of MS. I'm now in a wheelchair for over ten years now. I like to private chat one on one with most who are fighting MS with me. I live in a small town in one of the most beautiful areas just outside of Yellowstone park. I look out my window at the Rocky mountains from my lift chair and it's cold outside and I'm waiting for spring my favorite time of year. I hope everyone is having the best day they can. You can ask me anything when we chat I'm not shy anymore. Stay tough we will beat this πŸ’ͺ

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mhansenm1 profile image
mhansenm1
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26 Replies
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Kenu profile image
Kenu

Welcome to our crazy 😜 group of MSers πŸ‘. This is a great place to vent and find out lots of information on MS by people who care and live with it πŸ™. Look forward to getting to know you. Do you live on the Idaho side of Yellowstone? I did live in Pocatello Idaho for many years and the last three years in Meridian Idaho. Ken 🐾🐾

mhansenm1 profile image
mhansenm1 in reply to Kenu

I'm on the Wyoming sideπŸ˜‰ and we have another National Park on the other side of us the Bighorn Canyon National recreational area. Thanks for the welcome!

Kenu profile image
Kenu in reply to mhansenm1

We spent a lot of time at Hebgon Lake and Island Park. Had lots of friends with cabins in Island Park and Henry’s fork. Ken 🐾🐾

jimeka profile image
jimeka

Hi and welcome πŸ‘ as Kenu says we are a crazy bunch of ms’ ers but we all like to have a laugh and a giggle. We have some very knowledgeable people on this forum who like to share and we keep each other up to date on progress with treatments. As you have had ms for quite some time you can maybe share a few tips with us all. Looking forward to getting to know you better, blessings Jimeka πŸ¦‹

mhansenm1 profile image
mhansenm1 in reply to jimeka

Thanks!

mrsmike profile image
mrsmike

Welcome to the group!

mhansenm1 profile image
mhansenm1 in reply to mrsmike

Thanks

Jazzihorsecat profile image
Jazzihorsecat

A very warm welcome home to ya mhansenm1, this 1 is the bestest 1 on the web, MS forum that isπŸ˜„πŸ‘, now u-R family too!😎JazzyπŸ’œπŸŒΉ

greaterexp profile image
greaterexp

I’m glad you’ve joined us!

leking1 profile image
leking1

Welcome to the group! We are happy you have joined us!

pamgarner profile image
pamgarner

well,welcome! this website has kept me emotionally in tac, and given me some good advice,we are a good group of people, I am sure I will have lots of questions for you later. and what a beautiful view you have daily looking out your window:)

MarkUpnorth profile image
MarkUpnorth

OMG, I'm so jealous ,.... You Live in Paradise. I'd love the view! I've been traveling, lived many places, but never like that! I thought El Paso was heaven? See, you have something great!!! The M.S., well like me, I've gone essentially comatose for years, okay, just a few, but I did give up a prosperous lifestyle and businesses, yes plural, to M.S.,.. but never stopped fighting this disease. Today, after pushing myself, walking like walking dead, always with a tracker on my ankle (to count steps), with a cane, (which I recently abandoned them all after 5+ years having worn many out), keep on pushing! I actually have gotten better, via what goes in my mouth. Long story, which I would gladly tell you if interested, from comatose and juicing fruits and veg's to fight the comatose thing, to vita-mixing a few years thereafter, again fruits and veg's, to eating based strictly on the Whal's diet. (Dr. Terry Whal's - a doc with M.S.....who found what you eat matters).

I still follow quite closely the same, no processed foods.... But, after a war chest of meds, too numerous to speak of, to no meds, and doing "great" as can be expected for an old fart that continues to walk at least 10K steps a day, now again after more than half a decade, even without assistance....yeah, I'm dong okay!!! Glad you tuned in. There are really good people here. Including some, much worse then us.

P.S., I just donated the new assisted only wheelchair and walker we bought for my wife's mother, who recently passed from years of advanced Parkinson's, and we had them in our basement since then....no I'm never going that route.... I still remember the moment she asked for the "kale cure" as part of my start to healthy eating when I juiced anything green. Still love and eat kale regularly. She was in an assisted living then, no, it's not a magic pill we told her,...but a commitment to healthy eating is what's needed. Kind of hard to do in any place like that where the kitchen prepares a menu to choose from. Even though she was always health conscience, never enough to do the trick.

Anyway....I'm the crazy cure it with what you shove in your mouth guy, who has had M.S. for several decades, and after almost the same of DMT injections, and many, many other M.S. symptom drugs, I am now drug free (okay, but for a bit of legal medical cannabis for the evening pain that drugs could not calm.)

Want to chat weirdest M.S. symptoms? I've go some good ones!!!

kdali profile image
kdali

Welcome!

Peruzzot profile image
Peruzzot

Welcome to the group.

Elle61 profile image
Elle61

Welcome from a 40 year veteran , still walking with my walker but like my power chair too. I take foot drop medicine and baclofen , also use eatable cannabis for pain in the day time . I also try to eat well as much as possible mostly organic and no red meat .

Warm welcome to you!

Welcome I live in Houston been dealing with MS since March 2007

BDStein profile image
BDStein

I used to work at Old Faithful Inn, spent a lot of time in West Yellowstone. Used to go to Enno's Tavern grill steaks and play horse shoes. Good times.

IFwczs profile image
IFwczs

Welcome to this wonderful forum! I live in Chicago, and it's cold and miserable here most of the time weather-wise.

rrw5620 profile image
rrw5620

Hi Mhansenm1

It sounds beautiful where you live. I could look at beautiful landscape, storms, storms over the ocean and beach, Ect.

Have a question on MS. I am all over the place when I walk. Also have balance problems when I stand up. Combined the two together is like someone drunk. Not in a wheel chair. Use Caine which helps. Do you have any balance problems from MS?

Is it normal to have balance problems combined with foot with legs problems together? This is my first site and I'm sort of new at this. You try to find out from Doctor what ahead, but don't really tell you how to deal with it in everyday life.

I can tell everybody here know how to deal with MS enjoying life and HAVE FUN. I look forward to being part of this Group...………

Rrw5620

hairbrain4 profile image
hairbrain4

Welcome to the group. It's a great place to talk about MS good and bad. I bet it is beautiful where you live. I'm in a small town in the Ouachita Mountains in Arkansas & love it.

RoseySawyer profile image
RoseySawyer

Hi and Welcome! 😊❀🌷

BigMar7 profile image
BigMar7

Welcome to our group! I’m from Southern California and have had MS for 14 years. πŸ˜€

kycmary profile image
kycmary

Hi my name is Mary I was Dx in March of 1994. bbs

kycmary profile image
kycmary

I'm BACK! had trouble finding you got called by my hubby to come eat & forgot to leave a note to my self where I was at. Hope you enjoy being here later

jodigirl750 profile image
jodigirl750

A bit late, but welcome to the group! Lots to be gained being here, whatever you seek or offer! Enjoy!!

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