dizziness when moving

[Monkeyfeet1]

hi

Me again!

I feel dizzy whenever I’m moving whether in my wheelchair or the car.

Any idea what this might be? Obviously, the wheelchair is more problematic.

has anyone experienced this and has a solution?

I think it’s related to my eyesight.

Thank you 🙏🏼

[Anovis]

My husband feels "woozy and out-of-focus" almost all his waking hours. He frequently complains about his vision (blurry) but also deals with BP fluctuations that are severe. His hospice nurse and doctor can't offer any help with these issues. I don't know if this describes what you are going through but it's very disabling. I hope others will offer some insight.

[Monkeyfeet1 in reply to Anovis]

Thank you 🙏🏼 I see double but prisms help. X

[esj20]

same here, it’s my perception of things such as stairs, steps and lumps and bumps on any surface! When I’m walking I feel like a giant, like my heads in the clouds and my feet are miles below me.

I’m my wheelchair I misjudge kerbs gradients etc.

[Monkeyfeet1 in reply to esj20]

Thank you 🙏🏼

[GHG_]

Hi Monkeyfeet. I've suffered from poor balance but whaat was worse was when the room was spinning around me. All I could do was close my eyes and lie down. Probably suffered this for the best part of 20 years, and the only thing offered was a number of tablets, mostly relating to antihistamine. I was sent to an ENT doctor who said my balance was so bad I must never walk in the dark or I will fall. He sent me to a physiotherapist. To be honest I thought this would be a waste of time, I couldn't be more wrong. The physio had a great knowledge of neurilogical conditions and explained that the brain, eyes and ears are all connected.

She explained that when my eyes moved from side to side, unlike her eyes, there was a slight staggering or jerky movement. This is caused as the eyes don't understand the message that is being sent to them from the brain. She is the first person to involve me with a practical excercise. It's called "gaze stability". You need to look this up. For example, I would hold an item at arms length and keep my head still as I watched it as far left and right without it blurring or double vision. You can do the same type of excercise keeping the item steady (such as a pen or even just your nail)and this time move your head from side to side whilst always focusing on the item, Don't move the item. There are other excercises. So here in the extrordinately good bit. After a week or so of practicing this, I haven't had one day that the room spins. That's never happened before. I keep doing the excercises and that's over 4 months without any spinning.

Why oh why could someone not have introduced me to this at some time during the last 20 years. Honestly, the change has been incredible. I got excercises sent to me on email and also hand outs showing how it is all done. Please give it a try, ask your doctor if he can help here, it's a life changer.

Good luck

Graham

[Monkeyfeet1 in reply to GHG_]

I really appreciate this information. Thank you 🙏🏼