Hello all. I recently posted this on my 'home site' (PD) and thought that I'd gauge opinion from the MSA community. Thanks for listening:
About 8 years ago I accrued some neurological symptoms although I never realised that was were it was leading: I lost my sense of smell, started to panic in public speaking situations and my sleep was suffering. About 2/3 years ago I realised that my handwriting was going small and could tremble slightly when my right arm/hand did something. Then my right arm stopped swinging and it all led to a PD diagnosis.
I was resigned to this and did well on Azilect and then Requip both of which helped my symptoms very much until November last year. I asked to be put on Levadopa as I play in a band and wanted to remain as a player. I was surprised at how little difference the Levadopa made and this has continued to today. I'm meant to take a smallish dose but have become so frustrated with it's lack of efficacy that I took a single dose of 200mg this afternoon and it didn't achieve much. So I'm wondering if this is MSA unfortunately.
The conundrum is that I have very few of the symptoms associated with the disease. Essentially, on the debit side, I have bradykinesia and an action tremor. But I have no serious bladder issues (occasionally a sudden urge to pee but not awfully frequent and never incontinent), I have no erectile problems, I don't slur words, no issues with swallowing, have never fallen over, balance is good, don't have nightmares or hallucinations, have no postural hypotension, can walk quite quickly etc etc. And from what I know, losing one's sense of smell is more suggestive of PD than MSA.
So I'm puzzled if a little concerned (bit of an understatement!). Would like to hear your insights on my situation. Much appreciated.