When I was diagnosed 12 years ago my Haematologist (I must add that he was not a nice man!) told me right from the beginning that my ET probably wouldn't kill me - but being on Hydrea 'long term' would - his opinion was that if the condition itself hadn't turned into Chronic Myeloid Leukemia (CML) within 30 years, then the Hydrea would have caused it. Of course, this has always stuck in my mind - and probably has a big part to play in my interest in trials/research. I have only ever met one other person who has been on meds longer than me (the whole 12 years) - how about you ?
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