jakafi and pml

[robl777]

I read that you can get pml taking jakafi.....is this rare or common?

[ggrana]

what is PML short for?

[Chicagopv]

assume it’s Progressive multifocal leukoencephalopathy

[Loubprv Volunteer]

you know, let’s not worry worry about the what ifs and just be glad that this amazing drug is keeping those of us who take it, going!! Cup three quarters full and all that…

Wishing everyone a very merry Christmas and a happy healthy new year.

Best wishes

Louise

[Inca in reply to Loubprv]

Absolutely Louise,it’s keeping us going let’s not worry about ifs and buts ,I totally agree with you.Have an Enjoyable Noel .😍💕 Sally xx

[Ebot]

Hi there.

If you read the patient information literature you’ll see that PML is listed as a very rare risk of complication along with various other things like TB.

If you read the patient information literature about any drug - including the things we routinely pop into our mouth like paracetamol and ibuprofen - you’ll find listed a host of fairly scary but very rare potential complications.

Very rare complications means less than 1 in 10 000 people are affected. So of 10 000 people taking Jakafi, 9,999 - and possibly all 10 000, will not get PML.

Any drug or medical intervention is about benefits vs risks. In terms of the benefits of taking Jakafi vs the risk of PML it’s a sure fire bet the Jakafi would win. HTH.

[Inca in reply to Ebot]

My Medicine Traitant always tells me not to read all the papers in Med boxes or I would never even take a baby aspirin!!! Merry Christmas 🎄

[Ebot in reply to Inca]

Precisely!!! Happy holidays!

[Inca in reply to Ebot]

La même chose Ebot🎄😀

[ainslie in reply to Ebot]

Good points in this post 👍

[robl777 in reply to Ebot]

appreciate this detailed answer....the doc told me they have a antibody test to see if I have the JC virus that could raise my risk if positive.

[ainslie]

it has happened but is very very rare