SCT Journey update No.5

[LFCLove]

Hi to everyone who reads this,

Just thought I’d let you know that am finally in Addenbrookes hospital having chemo as we speak.

Had a Hickman line fitted last week. Am on Day 6, had dose of fludara and campath. Been just on fludara until today and was coping well, no side effects.

Campath is slightly stronger and took about 2 hours to be pumped in with various side effects.

Unfortunately I have succumbed to sickness but this was expected so an anti-sickness has been given intravenously and appears to be working.

I believe today will be repeated tomorrow and Melphalan started.

STC is due this Thursday.

Will update when I’m feeling better.

G

🤓

[Spanelmad]

Sorry to hear about the sickness.All you can do is take one day at a time.

[LFCLove in reply to Spanelmad]

Cheers, trying.

🫶🏻

[Spanelmad in reply to LFCLove]

Good luck for thursday !! Nearly there now.

[JediReject]

Thanks for your update in trying circumstances as you gear up towards receiving the donor cells Thursday. What you experience is par for the course and will pass so hang in there.

Good Luck going forward - Chris

[LFCLove in reply to JediReject]

Thanks Chris, appreciated 🤓

[Hatchie]

Thanks for the update. Best of luck going forward.

[ETinNYC]

Hoping the anti sickness medicine works quickly and you're soon feeling better. All the best as you near your transplant date. We're all thinking about you and wishing you good things! Hugs from NYC.

[S031251]

Good luck hope it goes well for you

[william-Indo]

Thanks for your update.Wishing you a smooth journey and speedy recovery.

Cheers

[ritaandscooter1]

Praying for you and a speedy recovery. Best wishes and stay strong! Kerry

[lizzziep]

Hope all goes well.

[Maurabawn]

Thankyou for sharing your experience. Sending hugs and stength. X

[JAB6]

wishing you the very best outcome and a speedy recovery.

[RedCardRob]

Good luck for Thursday.On a cheery note....is it just me or do all these names sound like there coming out of Norse mythology!

[ABPD]

All the very best for prep and for Thursdays procedure. Wishing you a speedy recovery 🙏🕯🙏

[JP1952]

Thank you for sharing your story. One cannot read it and not be moved as it is so gruelling for you but it is also very interesting to read what involves a SCT. I sympathise with your pain and send all the good luck in the world.It is a journey many of us will not and cannot take but there is a little bit of me that wishes I could to be rid of this horrible disease.

So well done you, you have gone through and been through so much but you are nearly there and I take my hat off to you .

Will be thinking of you.

[LFCLove in reply to JP1952]

Thanks JP,

It’s as much for me as i find it cathartic.

I know I include the side effects that I’m getting but will stress that not everyone gets them as each persons journey is different.

Thank you and everyone who has responded.

If our stories, experiences and coping strategies can help one person, it’s all been worth it.

Will update when able

🤓

[Fieldsy57]

Good luck with your treatment 👍

[Flyingsteamer]

Good luck going forward, hope you don't have too many more side effects. 👍

[Mazcd Partner MPNVoice]

thank you so much for sharing your update with us all, I hope that the anti-sickness meds continue to work. Good luck for Thu, we are all thinking of you and sending you lots of best wishes and hugs. Maz x x

[Tortina]

I hope all goes well and you make a speedy recovery . Sleep as much as you can . If you get mucositis hang in there …… it will pass . The nurses were amazing looking after me when I had my stc and hopefully it will be the same for you .

Best wishes

Tortina

[Mudmaker]

Good luck and healing hugs.

[SRH55]

Sending best wishes to you. The sickness will pass & I’m sure the anti-sickness drugs will continue to work. Good luck for Thursday.

[HoundSept2022]

Good luck. It's a long and unpleasant haul. Your MPN friends all wish you well.

[Purplechoclover]

Nearly theough it and now your on anti sickness hoping that helps. Keep smiling 😊

[KLCTJC]

will be praying for you. Stay strong! We are all here to support you!❤️

[CLONDARA]

Thinking of you and sending you love..x

[Cja1956]

Sending healing prayers. 🙏🏼

[Cyprusfan]

Good luck. Never be afraid to ask for stronger anti sickness tablets . They were my sons saviour!!...that and his amazon fire stick whilst in patient during his stem cell transplant.

[Mishie14]

Thinking of you, admiring your courage and positive attitude. Best wishes this is the start of much improved health. Stay strong!

[Minify]

Thank you for the update. Good luck on Thursday!

[CanadaG]

Thank you for the update. I wish you all the best with the transplant and cure!

[Aldebaran25]

Wishing you all the best and a smooth recovery !

[Tintins]

Thinking of you at this challenging time, and wishing you every success 🙏. Keep us informed of your progress .

[Poppy6060]

Good luck hope all goes well xx

[Meatloaf9]

Best to you on your stem cell journey. Keep your eyes on the prize at the end of the trip.

Best

[Bluetop]

A really tough journey, but all the best for Thursday.

[DiveGoddess]

Best of Luck, sending you positive vibes 😊

[DarcyShepp]

Thank you for posting these updates, I wish you well for the big day. Sending love