Haven't posted here for some time as everything seemed to be going reasonably well after my SCT back in February. Today I got a call to come into hospital as an inpatient as there was something concerning with yesterday's blood tests. It turns out my bilirubin level has shot up to 75 and the doctors need to find out why. I am recovering from a bout of parainfluenza, a bit like normal flu but a different virus. So I've had some blood tests and initial check over by doctor and I'm now waiting for liver ultrasound and also a chest x-ray. There are a number of possible causes, could be due to my very high ferritin levels caused by nearly two years of RBC transfusions every two weeks, or a reaction between new meds for parainfluenza and existing meds, or GVHD from DLI's being given to boost chimerism, or VOD returning. Oh well just have to grin and bare another hopefully short stay in this NHS hostel.
Back in hospital: Haven't posted here for some... - MPN Voice
Back in hospital
Sorry to hear about the medical turmoil. Glad they noticed and are attending to it. Hope you get answers and out of the hospital ASAP.
Hoping this is just a little bump on the road to full recovery. I am so glad your SCT care team is on the ball, taking good care of you. Best wishes for a speedy recovery!
Sorry to hear you are having issues but it sure sounds like they are giving you a thorough assessment. Good luck, and let us know!
sending hugs and prayers a swift recovery
Hope you recover soon to normal values, thank you for posting.
sorry to hear about this bump in the road. Wishing you a speedy recovery
yes, It seems it can be a myriad of things responsible. Glad you're being taken care of! I always try to keep my immune system as stable as possible by eating an autoimmune diet. This is particularly important with SCT, to keep the body as stable as possible. 🙏 Hope you are up and running soon. Anag
I hope you get back on track soon. Best wishes
Loads of positive thoughts being sent your way.
Best wishes for a speedy recovery and you are discharged home soon.
I hope they narrow it down quickly so they can treat it and you can continue on your road to recovery. Let us know what they find.
Hi wishing you well and hopefully you will be home soon Poppy
Best wishes to you. Hope you are being looked after well
praying for a swift recovery! You will be on my mind.❤️
Hope you are being looked after and then get on the road of recovery and back home
Wishing you better results, and some good news moving forward. Hang in there.
FlyingSteamer,
Hoping you get this turned around. Glad your team is on top of it. Best to you in your recovery.
I am sorry to hear about this. I hope they will figure this out without putting you through the ringer ,so to speak. Greetings from LA ( LOWER ALABAMA)
It does sound like they’re on top of it, and you’re getting the care you need. My thoughts are with you for quick answers and solutions. Thanks for sharing the update with us.
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