Mon Jun 28, 2021 9:18 pm
Hello MPNers
Since my last post I left hospital but after 10 days 5 days at my parents house till my kids got over sniffles and 5 days at home my liver function deranged significantly again so I was readmitted to Westmead Public Hospital. Today is day 22 of my stay back at hospital
I am being treated for Graft Versus Host Disease to my liver and small intestines time will tell if its an acute attack or chronic. The good news is that at my last bone marrow biopsy all my marrow cells were donar cells whilst previous biopsies showed that despite the myeloblative chemo my old marrow represented about a quarter of the cells. That situation is called mixed chimerism. So keeping positive, over the last 2 months a war is happening in my marrow and its no surprise the liver and gut have been hit by some friendly fire ie Graft v Host Disease. Only time will tell the longer term effects but one thing is for sure in this process its important to focus on the now because tomorrow could have a whole number of differrent outcomes and variables which wastes time and energy if you take the time to dwell.
Myelofibrosis patients have one of the slowest recoveries from stem cell transplants as the new marrow has to grow through the scar tissue in the marrow space and some of the Luekeamia patients who had their transplants at the same time as me are recovering very well which is really encouraging.
Interstingly I am back on the Ruxolitinib as it has been found to reduce the inflammation generated by Graft v Host Disease. They have been increasing the dose slowly as they wean of the steroids. Hopefully by Wednesday I will be off Intravenous drugs and on oral drugs with good liver function which will be my ticket home.
My hospital ward has gone into lockdown complete visitor ban which is tough but thank The Lord for modern communications. Ive been streaming Euros Copa America F1 travelling the world on the internet and face timing family and friends. We live in good times.
Thanks for your interest
Best wishes Warwick
(posted by Steve)
Veins Tapped, Blood Trapped, White Cells Zapped ! 😎
