Vitamins and Hydrea ?

[JustKeepSw1mming]

Hi all,

I am still trying to get an appointment with an MPN specialist.

In the meantime, I am due to start Hydrea in 2 weeks.

I was hoping to take some vitamns to "prepare" my body. However, when I asked at the pharmacy, I was told I had to be caregul and I had to talk to my hematologist.

I asked previously about vitamins and Peginterferon, but didn't have a chance to ask about Hydrea during my last consultation.

Is anybody aware of any interructions or has any recommendations?

Thank you very much.

Mary

[Cat1001954]

Snap my appointment is tomoro I’m going to ask what vits I can take too

[JustKeepSw1mming in reply to Cat1001954]

Yes, I didn't realize either that there might be restrictions. Good luck for your appointment!

[Cat1001954 in reply to JustKeepSw1mming]

Thank you so much

[Carol0925 in reply to Cat1001954]

Which Vitamins are you planning to take?

[Cat1001954 in reply to Carol0925]

Vit c and vit d

[Carol0925 in reply to Cat1001954]

During my first Haematology appointment I asked about my and there are no problems taking Vit C and D

[Smoothie2020 in reply to Cat1001954]

My pharmacist said no problem with vitamins.

[Maurabawn]

Hi! I was advised not to continue taking Starflower supplements. All the best for your next appointment and this is a definite question to be discussed then.

[Cat1001954 in reply to Maurabawn]

Hi I was just told. Vit c and vit d is fine to take with chemo drug hydroxycabamide

[JustKeepSw1mming in reply to Cat1001954]

Thank you very much for asking and for sharing, Cat!!

Mary

[Cat1001954 in reply to JustKeepSw1mming]

Your welcome Mary x

[RazB]

hi, I am following this if that’s ok as very interested in this. I hope you get some useful answers here and from your team x

[Annula]

Hi - I had the same issue, but got advice from the pharmacy. I take Glucosamine, cod liver oil & magnesium. However, I would still get professional advice from haematologist if possible.

[Jazzyb50]

I'm sure anything containing B vitamins/iron can be bad for people with PV as they can raise HCT, irrespective of whether or not you take interferon/hydroxycarbamide. Always best to check with your consultant.

[ainslie in reply to Jazzyb50]

Re taking Vit B or iron, be very careful with iron as it can spike Hct,but with B’s , Vit C etc it depends on how well your MPN is controlled by your meds, I take B and C and others but I am well controlled on Rux, I didn’t take them on venisection only

[Mostew]

Suprised if vit c and d arnt fine for you.

Make sure your d level is done so you know strength to take. Then monitor yearly and adjust as necessary

[Trocken]

It's def worth getting vitamins checked out with your haemotologist, I've had to take iron recently prescribed by GP as i had very low levels and in doing so its made my platelet count increase, the Haemotologist wasnt too happy! My Vit D and B12 is also low but they're happy with me taking supplements for these as theres no affect on my blood work. Better to ask!

[JustKeepSw1mming in reply to Trocken]

Thank you very much, Trocken!

[Mostew in reply to Trocken]

How much did your platelets increas, ,and was it consistently higher over several blood tests?

[AndyKay]

Hi, I take Hydra and my doctor said it was okay to take Vitamin D and C, fish oil and magnesium. But, you should definitely check before taking anything new.

[azaelea]

Hi, I know Vit D is ok as when Covid started we were sent free supply of Vit.D . I have E.T and on 500 mg Hydroxy daily. Not sure about other vitamins but would think C is Ok.

[JustKeepSw1mming]

Thank you very much all for replying and your advice!!

[Wyebird]

Hi you need to run everything past your heamo. I haven’t heard of any Negatives though.

I take VISIONACE it’s a multivitamin designed for macular degeneration. I also takes magnesium biotin and a b12 supplement occasionally.

[JustKeepSw1mming in reply to Wyebird]

Thank you very much, Wyebird!