Start Besremi Tomorrow

[Elizka]

Tomorrow is the day I start Besremi. I was dx with PV 4/15 (tax day in US) in 2016. Since then I've only had phlebotomies and taken aspirin.

I've had no major issues or challenges other than low ferritin which I believe contributed to some fatigue. Immediately upon dx, I began educating myself on treatment options and possible cures. In 2017, I started following the research that eventually lead to Besremi to be approved by the FDA.

An RN at my HEMO's doctors office is doing an injection training session with my husband and I. I will wait a bit at the HEMO's office to see if I have a reaction (which was suggested by others in this community).

I'm stating (less than the recommended dose) at 50 mcg to give me body a chance to adjust. (I advocated for that with my doctor again, thanks to this community.)

Special thanks to hunter ETguy, hunter5582 for their massive contributions to this community and their insights which have contributed to my final decision on taking the drug. Also, thank you to Paul123456 and JohnSC for sharing their personal experiences with me which also helped a great deal.

Mindset: I will feel okay and not lose days feeling bad after injection!

[hunter5582]

Glad to hear you are ready to get started and in the right head-space.

I took my last Pegasys injection yesterday. I will do my first Besremi injection next Wednesday. Per the recommendation from ruben Mesa for converting from 45mcg PEG, I am starting at 63mcg of Besremi. We will be monitoring every 2 weeks to get the dose right. I am doing a baseline CBC right before I switch to Besremi. We will see how it goes.

Do please let us know how things go. We can compare notes.

[Elizka in reply to hunter5582]

Will do. Besremi Buddies.

[SoledadBarcelona in reply to Elizka]

Yes, Besremi buddies.

[Meatloaf9]

So glad that both you guys have the opportunity to take besremi, please keep us informed how it goes. Best to you both always.

[SoledadBarcelona]

Hello Erika,Think that you are in the right way at 21th century. I started with Besremi too. My doctor says that 100mcg to start.

Good luck!