Third jab

[HazeBlue]

Anyone know if people with MPN’s will get third covid vaccine.

[Whitehair51]

I got mine, I'm in the US.

[hunter5582]

Here is the link to the CDC recommendation in the USAcdc.gov/coronavirus/2019-nc...

• Receive active cancer treatment for tumors or cancers of the blood.

• Received an organ transplant and are taking medicine to suppress the immune system.

• Received a stem cell transplant within the last two years or are taking medicine to suppress the immune system.

• Were diagnosed with DiGeorge syndrome or Wiskott-Aldrich syndrome.

• Are diagnosed with HIV and have a high viral load or low CD4 count, or are not currently taking medication to treat HIV. If you have HIV but are not sure if you fit into this category, please contact your provider for further guidance.

• Are taking drugs like high-dose steroids or other medications that may cause severe suppression of the immune system. If you are not sure if your medications severely suppress the immune system, please contact your provider for further guidance.

[Bluesloth1]

I’m assuming you are in the UK? I can’t work it out. I have looked at all the detail and I’m worried that we are not. I think the US has broader categories. Maybe it will depend on what treatment you are getting?

[HazeBlue in reply to Bluesloth1]

I think if on Chemo Drugs we should be considered for third jabs. Not have to wait .

[Bluesloth1 in reply to HazeBlue]

I agree but it seems that no one is really sure if we fit. My GP won’t be proactive in this I’m sure. It feels like it’s the whole shielding scenario again. Good luck to you.

[Paul_1971]

These 3rd Jabs aren't booster jabs, that is a separate program.

This is for those with most severely impacted immune systems.

From what I understand booster jabs are still planned after that.

I'm no expert but i expect most of us with an MPN will receive our 3rd jab later rather than during this program. There might be exceptions such as those undergoing stem cell treatment.

[Rem31 in reply to Paul_1971]

Yes, in a nutshell that’s what Prof Anthony Harnden (JCVI) said in BBC radio4 interview this morning. Worth a listen... it was a just after 7.50 if anyone wants to find it.

[Barbara140 in reply to Rem31]

I heard that too. While he didn't specify MPNs he definitely said blood cancer, do I guess we need to ensure our GPs know that this is indeed a blood cancer.

[Lola367]

There's some useful info here from Blood Cancer UK: bloodcancer.org.uk/news/why...

[Mazcd Partner MPNVoice]

Hi everyone, I have advice from the medical team to say, this will all be from mid Sep, and it will be GP driven, and we will update ASAP when we have more information for people with MPNs.

SO watch this space!

Maz

[rebeccaxxx]

I have just read the jcvi update and I don’t think we are included unless we have had specific immune suppressing treatment around the time of the initial doses, or have had a stem cell transplant.

[Paul_1971 in reply to rebeccaxxx]

For me it was my medication (Ruxolitinib ) that was why I got asked to shield, not specifically having an MPN. My sister has an MPN too and was never asked to shield, she was told by her consultant she wasnt at any more risk than others.

[DJK12 in reply to Paul_1971]

I'm the same - I'm in Scotland and gathered I was on the shielding list as I was identified from the National Prescribing Register as being on ruxolitinib. However as Maz says we have to wait for more information, but a few weeks ago I got a letter from NHS Scotland saying that their records showed 'you are coded as having a condition that leads to immunosuppression'. The letter was recommending any household contact - a carer or anyone aged 12- 17 living with me -to make an appointment to have a vaccination.

Listening to the Today programme this morning I thought therefore there was some hope of eligibility for the third vaccine. Certainly hope so as I had pneumonia in June leading to a night in hospital and 5 weeks of three different antibiotics to shake it off - really don't think my immune system is in very good order! Diana

[rebeccaxxx in reply to DJK12]

I was told to shield purely because of my ET but I was told very late because of some new data that was published. The shielding list seems to be much bigger than the third dose list, perhaps because we now know more about how the virus works they can be more specific.

[ritaandscooter1]

Living in the US (Alaska) My Doctor wanted me to get the 3rd jab right away so I got it yesterday and have been feeling like crap! I had no real noticeable reaction with the first two Pfizer shots except a dull headache. The only difference is that I was not taking any medication for my PV during the first two shots but on this 3rd one I've been on low dose (22.5 mcg) Pegasys. I have achy joints, dizziness, incredibly sore arm and just out of it. I wonder if there is a interaction between vaccination and Pegasys? Kerry

[givingITMybest]

I had the third booster shot August 20th. I signed up on line at my pharmacy ( in the US). It was easy. I was not asked for proof of my blood cancer.