Hi Folks, , Thought I'd post a pic of yours truly hooked up to my Electric Corporeal Treatment ECP machine last Thursday. The wonders of modern science, it is the stuff of Star Trek. Depending on a number of patient factors ie weight, blood counts the bod in charge either inputs info or works out how much blood I can afford to part with, opens a kit containing tubing and a centrifuge and sets it all up.
Over the next hour and a half the machine does its thing, takes the designated amount of blood via my Tesio Line separates it out and the white cells are routed into a flat clear hard plastic chamber where they are exposed to Ultra Violet light. Once zapped the whole lot is returned to me.
They are unsure exactly how the mechanics of this treatment works but for some it can help alleviate the effects of Graft Versus Host Disease particularly improving the skin and liver function. It's hard to measure the success which can take many months to bear fruit, and in my case I'm not sure it's worked to any great extent. Then again would I be worse without it ? Currently I attend two consecutive days a fortnight but this will soon reduce to once a fortnight or month. Each treatment costs roughly 1k.
You need to wear sunglasses in bright light for 24 hrs after because your pupils don't react and shut down as quick. And it can make you tired. I seem to tolerate it well.
Cheers Chris x