WARWICK'S ASCT ~ LATEST UPDATE...

[socrates_8]

Evening all...

Below I have Posted Warwick's latest Update on his Stem Cell Transplant journey...

Best wishes all, stay safe & well...

Steve

Re: WARWICK's ASCT Journey Begins Today...

Post by Warwick » Fri May 21, 2021 10:09 am

Hello everybody I am now at day 86 post transplant and enjoyed 6 weeks at home however about 2 weeks ago I started getting some stomach issues and my liver and kidney functions have dropped write off so when I came in for my regular Monday bone marrow team clinic meeting I was told the not go home go straight to ward c5a and Westmead my old home during the the transplant. I had a endoscope and they detected some mild graft-versus-host disease in my bowl and I am now receiving steroid treatment .

I am not sure how long I will be in hospital for that, it's probably going to be at least another week as they need to treat the gvhd and then taper me back off the steroids. I had a shot of g-csf which shot my neutrophil level from .7 to 3.0 in about 6 hours to assist with any infections from the endoscope pretty amazing jump when my levels especially my neutrophils had been struggling to get to 1.0 unfortunately this will be a temporary benefit and it is expected that my white cell level will go back to where it was in a couple of days. I remain confident in my medical team and strong that I will make a full recovery just with a little bit more patience then what I was originally hoping for.

Thanks for all your support over the last 3 months it is amazing to have positive posts from all over the world I truly appreciate it.

Best wishes...

Warwick

[MFBMT2011]

I had some liver/kidney issues while coming off cyclosporine a few months out and was given steroids. I got even hairier prompting my youngest to suggest that I audition for the next Planet of the Apes movie as I had my own outfit! Chris

[JediReject in reply to MFBMT2011]

Chris , you crease me up sometimes buddy. . , if twer me it would of been an Ewok as I'm reet petite. Chris the Jedi version !!

[JediReject]

Hi Steve Many Thanks for sharing this update from Warwick. Hopefully this will be a minor setback on his road back to full health. The moderate Graft Versus Host Disease Warwick is experiencing could be a blessing in disguise as quite often it can denote a strong Graft which how my Consultant described it to me. So in a way it's a good thing though not whilst you're going through it and I really hope it remains at this level for him and he's not on too high a dose of steroids for any longer than he needs to be. Please Thank Warwick for his update and pass on our thoughts and best wishes to him going forward.

Chris

[Otterfield]

Thank you for sharing this. It's very helpful to hear about Warwick"s experience, the highs as well as the scary parts! Please pass my thanks on to him for being willing to share during a rough time.Best wishes, Jennie

[Minu68]

Thoughts and speedy response to treatment xox

[tessa46]

Thank you for sharing Warwick’s journey , I really appreciate hearing about his journey into the unknown, very brave of him, we are rooting for him.

[socrates_8]

Thanks guys...

Warwick is always appreciative of your support & good wishes...

Cheers

Steve

[Kiki64]

Hello

Thank you Socrates for the update on Warwick .

Hope he continues to improve everyday

Kiki64

[socrates_8]

Thanks Kiki...

Best wishes

Steve

[Bluetop]

Please thank Warwick for sharing and I hope he is soon home again -a brave man.

[Mazcd Partner MPNVoice]

Hi Steve, thank you for the update, please give Warwick my best wishes, and I hope that he gets to go home soon. Maz

[socrates_8]

Thanks Maz & Bluetop...

I'll be sure to pass on your messages...

Cheers guys...

Steve

[mhos61]

Sending best wishes Warwick’s way. Hope he’s back with his family soon.

Thanks Steve

[socrates_8 in reply to mhos61]

Pleasure Mary...

Stay safe & well...

Steve

[Cja1956]

Hi, Steve, thanks for posting this latest update. It helps give some of us insight into what to possibly expect after a SCT. It sounds like Warwick has a great attitude and will overcome this next obstacle, and can start looking to a future of good health. We are all rooting for him.

[socrates_8 in reply to Cja1956]

Hey Cindy...

No problem, hoping you are feeling a td better too...

Best wishes

Steve

[Cja1956 in reply to socrates_8]

I am, thanks. I don’t know if you read my update, but when I went back for my lab work about a week and a half ago my red blood cell numbers had improved, so I did not need my EPO injection. My platelets were still high but they went from over a million to about 750,000. I start my physical therapy tomorrow for my herniated disc in my spine. All things considered, I am definitely doing better. I hope you are doing well.

Best wishes,

Cindy

[socrates_8 in reply to Cja1956]

Hey Cindy...

Still recovering a tad after my big Ride etc...

But like you, & all things considered, I am doing fine...

Best wishes

Steve