Red spots

[netty64]

Hi I've been find little red spots mainly on my body, a few on my legs and arms. There are not a lot of them but they don't get a head on them, they just seem to go dry an form a crust on them.

Does anyone else get this?

[Pte82]

Netty, do the spots look like these pictures show? If so, you need more vitamin C.

dermnetnz.org/topics/scurvy....

[netty64 in reply to Pte82]

Not vit c deficient as have more than my 5 a day .

[netty64 in reply to Pte82]

Doesn't look like those.

[809123]

Are you on treatment?

[netty64 in reply to 809123]

Yes I'm on Hydroxycarbamide

[Trocken]

I have these, more keep appearing but they never disappear! I have no idea what causes them though?!

[netty64 in reply to Trocken]

Thanks what mine look like but mine crust over then go

[Lions3 in reply to Trocken]

I get them too (I have ET).

[Kari1961 in reply to Trocken]

My body is covered in these red spots - only on the front of my abdomen. I don't have them on arms, legs or my back. I've had them since my mid 20's, so long before PV and medication. I'm like a human 'join the dots game'. Mine don't disappear either.

[lizzziep]

I have them, mine don’t disappear either. Specialist nurse said they are a side effect of ET and also age related - I’m 68. Mine are just on my abdomen.

[jointpain]

Petechiae is what they are called, they are a harmless tiny bleed. They can indicate many things but are probably something to do with the MPN or the treatment you are receiving. My wife has a few, as do I! And I do not have an MPN.

[Tinkerbell13 in reply to jointpain]

Yes I have ET and frequently get them...many, many...seems always tied up with taking Clopidogrel....apparently it is a form of bleeding but not v serious...but can look a bit alarming sometimes, as so many.

Tinkerbell

[Devilgirl in reply to jointpain]

I get these too. I have ET & am on Aspirin & Hydroxycarbamide.

[light]

I have them too and I had them since my twenties but then I was not with ET then.

[hunter5582]

Trocken and Jointpain have already mentioned the common "red spot" phenomena. Here is a brief explanation.

"Red spots on the skin that occur singly can be a small benign growth of blood vessels, known as a hemangioma. Tiny, pinpoint hemorrhages can be seen in the skin which are referred to as petechiae. Purpura spots are generally benign, but may indicate a more serious medical condition, such as a blood clotting disorder."

tribuneindia.com/news/archi....

Like Trocken, I have a lot of the hemangiomas (aka cherry angiomas) all over. For me, they are related to another genetic condition - Neurofibromatosis Type 1.

I suspect Jointpain has the most likely explanation. Petechiae can be a side effect of aspirin or other blood thinners. They are also seen with people who have MF/thrombocytopenia and with people who have Acquired von WIllbrand Disease (especially if they take aspirin or another blood thinner).

My fabulous PCP always says "the simplest explanation is usually the best explanation." This is likely as simple as a side effect of the aspirin if you are taking it. Best thing to do is to review it with your care team, which hopefully contains a MPN Specialist already familiar with this phenomenon. It is most likely something quite benign and just one of those minor annoyance we put up with due to a MPN.

All the best.

[Turfbeg]

Yes, I have had them on my torso for at least 10 years before my PV was diagnosed. When I first noticed them them my GP wasn't the least bit concerned. They are permanent and I believe they were the first signs of my PV (ET) but it took blood tests 10 years later ( after I experienced lower diaphragm pains) for diagnosis of PV. Retrospectively I believe I may have had ET for many years but GP wasn't familiar with symptoms - even a blood test which should have flagged up problems a couple of years before I moved and changed GP practices wasn't considered problematic by my former GP. Mine just stay , no crusting.

[EssThro]

My wife and I have had the permanent red spots for decades. Our doctors have both said they are cherry angiomas, harmless small blood vessel malformations. We haven't tried connecting each others dots yet, but maybe we should!

[Rackon2]

Yes I do too. Some look like red dots and some form a scale or crust. I take hydroxyurea 8 tabs a week. Do they ever go away? They don't fit into excema or psoriasis. And they are itchiy. Any advice please. Thank you.

[Lettie_WP]

I have a half a dozen or so (I'm not on any blood thinners) - I think the first must have appeared 20 years ago or so. The others have popped up sporadically, but more so in the last few years.