swollen, red fingers

[Eloise70]

Why are my fingers swollen, red & tender? It used to be my toes had this condition... what next?

Is this a sympton of ET? I have just had a 2nd BMB cos the first was inconclusive. I am in

the dark - just taking aprin daily.

Thank you.

[hunter5582]

Yes - this can be an ET symptom. Erythromelalgia can occur in the toes or the fingers.

nhs.uk/conditions/erythrome....

Note that we can get this kind of pain in the extremities with MPNs without it being ever enough to be called erythromelalgia. That happened to me. The MPN Specialist just called it "PV Toes."

Since this is a new symptom you should definitely let your care team know ASAP. They can best advise you how to treat the issue. Some find that increasing the aspirin to 2x/day helps; however, that is not something you should do without consult with your care team.

Hope you find relief soon.

[Eloise70 in reply to hunter5582]

Thank you, Hunter... you are always so helpful. ET fingers & toes, huh?

[Little-friend-Susan]

I have red painful fingers and Prof Harrison’s team doubled my clopidogrel which helped a lot.

[Eloise70 in reply to Little-friend-Susan]

Thank you! I have emailed my doctor but expect feedback will come much later!

[givingITMybest]

This is exactly what I experienced 5 months before my diagnosis of E.T. My fingers were warm to the touch, swollen, red and painful. I went to 5 doctors and two natural paths, until finally someone thought to send me to a hematologist. Perhaps you are in the early stages, but think about watching your platelet level closely. Good luck to you

[Eloise70 in reply to givingITMybest]

Thank you, I have ET diagnosis but await BMB results. Recently blood tests done but I cannot get haematology dept at the hospital to give me the results! I thought I was entitled to see them. They just don't respond to my queries, also about the fingers issue. Disappointing.

[givingITMybest]

Hmm, that's troubling as this is your body and you should have the results!