Red skin impression shoulders

[Smudger0122]

Evening All,

I attended Lord Mayor's show today in London and being a good dad, I carried a rucksack with drinks,sweets and any other rubbish my family required for a day out. 😂

During the day my shoulders ached with the weight (Lots of sweets and stuff) felt uncomfortable. Like burning sensation.

I had episodes like this about 5 years ago, and was diagnosed eventually with Pressure Related Urticaria.

These were raised hives, that appeared on my body after having Pressure applied to me.

Overtime this condition vanished.

This time no hives, but have been left with red shoulders and impression of rucksack straps.

Still aching few hours since being home.

Does anyone else suffer these skin impressions?

I'm ET CALR on Hydroxycarbamide, clopidogrel and omezaprole.

Also sore burning feet, more so right foot under the ball rear of toes.

Thanks

Mark

[hunter5582]

I have experienced the burning pain in feet and toes, which is a classic MPN microvascular symptom. It was solved by an appropriate dose of aspirin. The flip side is that when my platelet levels were higher, I experienced excessive bruising while on the aspirin.

It is hard to say exactly what you experienced with the excessive reaction to pressure on the shoulders, but it sounds like a possible MPN issue. It would be a good idea to let your MPN care team know about the issue.

Hope you get answers/solutions soon.

[Smudger0122 in reply to hunter5582]

Thanks Hunter,

Fortunately I have a consultation with Guy's hospital in a couple of weeks.

So will raise my concern with them.

[Jennytheb in reply to Smudger0122]

Hi, good to hear you have an appointment at Guys, they should be able to help, certainly hoping so anyway. I am Jak2 ET and on Hydroxy and Clopidogrel as I cannot take Aspirin. I have no side effects so am very lucky. Keep in touch about this. Best regards.

[Smudger0122 in reply to Jennytheb]

Hi Jenny

Its strange as I've carried many rucksacks over my shoulders.

But this day ached and felt different, like I say by the end of the day I had red impressions.

My left shoulder has a bone spur protruding, possibly arthritis which I actually forgot was picked up early this year.

But still strange to be left with the red impressions?

Thanks

[Jennytheb in reply to Smudger0122]

Sounds very strange doesn't it! All the best!

[mark382]

Yes, if I rest my arm on a desk or even hold anything for a long time, I get red marks fortunately they don't itch. I had normal raised welts some years ago and diagnosed as Urticaria. My wife has red skin after pressure and diagnosed as pressure Urticaria. Her's itchs like mad. My wife takes antihistamines every day - prescribed by dermatologist. Even if I take antihistamines I still get the redness,but no itch. I'm on Aspirin and venesections for PV. I believe it's due to blood leaking between the layers of skin due to high levels of histamine.

[Smudger0122 in reply to mark382]

Thanks Mark,Fortunately I don't get red marks that easily. Buy I will discuss this with Guy's hospital in a couple of weeks.

My urticaria was that bad about 5 years ago, and then as mentioned just fizzled out.

[lucieboo]

Burning feet I can relate to, definitely a problem for me on Hydrea, but I really don't kow if it is the cancer or the drug. All of the itchy things seem to relate to mast cells (raised basophils), which break down and release histamine. Try an antihistamine. I take Atarax at night but it makes you drowsy, Cetirizine is an alternative. If your urticaria doesn't resolve by itself you may need cortisone ointment.

I am now on Jakavi which is much better for the itching, but limited to progression to myelofibrosis, which I now have, as it is horrendously expensive.

You can't do much about your feet, but don't carry a rucksack would be my advice. Shopping trolley?

[Smudger0122 in reply to lucieboo]

Thanks Lucie,I can't get a shopping trolley on the London underground 😂

I will speak to Haemotologist next week.

My recent bloods were all good as well, so very bizarre.

[cfchanel]

Hi Hunter5582, I was on hydroxycarbamide for a while and the pain in my feet as in the burning sensation was all the time. I have since stopped the medication as it wasn't agreeing with me at all, and I still get the sensation but not as often. Have a chat with your hematologist who can advise. Hope you feel better soon!

[MWxxxx]

Yes the bottom of my feet are always really hot - I wouldn't say burning but they feel very hot and dry to touch. The pressure urticaria is very familiar to me. In the couple of years prior to being diagnosed with PV I started getting welts from brushing up against things eg. plants, resting my arm on a table, anything really. They were stingy and painful and lasted about 20 mins. This then progressed to any kind of pressure on my skin - mostly arms and legs and again got really nasty welts. I now take antihistimine every day which stops the welts. I am also now on hydroxy and aspirin. However, everything still leaves pressure marks on my skin - its like i am made of plasticine! I cannot wear socks with elastic and glasses or face masks leave big indents in my face for ages after. Doctors and Haematologists dont seem very interested but it does bother me.