nucleated red blood cells

[Timjonze]

My NRBC count has always been 0 but this month it is at 0.01. I’m a little worried as I know anything above 0 is considered unusual and my haem once told me that this is one of the markers of progression. However it is still just in normal range. Does anyone else have any experience of this? I have an appointment in a week but wondered if anyone had advice?

[Hopetohelp]

Out of the blue in July 2020 I had a 0.01 nrbc. Never had one since. Haematologist wasn’t bothered at the time either. Hopefully yours will be the same

[Timjonze in reply to Hopetohelp]

That’s very reassuring thanks for getting back to me and fingers crossed!

[Bluetop]

I had a 0.01 reading a few years ago but then 0.00 for a couple of years. I've just noticed this hasnt been tested for a while, but I don't know why not.

[Timjonze in reply to Bluetop]

Thanks for this. Feeling more reassured now. Was it even mentioned at your appointment?

[Bluetop in reply to Timjonze]

Only by me, but consultant not concerned.

[KC63]

Hi I've had same and 0.02 but back down now. I mentioned to my consultant but he wasn't concerned, so I'm not!!

[Timjonze in reply to KC63]

Thanks for getting back to me. Panic has died down a bit now!

[mother2britton]

I have had them off and on for the past five years. My specialist said they can be seen with ET, not uncommon do to overworking bone marrow. Hope this helps.

[Timjonze in reply to mother2britton]

Thank you

[Mirabellegage]

I’ve PMF and my NRB vary between 0 and 0.5 - now hovering about 0.1. Diagnosed this year but I’ve had numbers above 0 for the last 10 years. My higher numbers seem to tie in with when there was more stress on my bone marrow (significant training/over training).

[Timjonze in reply to Mirabellegage]

Interesting? What do you mean by training - as in exercise? I’ve just trained for a half marathon so maybe it was that

[Mirabellegage]

Yes - exactly that - I was either running or cycling everyday and think I was overcooking it - I’m probably not doing quite enough now but I’m doing more strength and mobility work instead. Congrats on the half marathon!

[Timjonze in reply to Mirabellegage]

That’s so interesting, thanks for letting me know. And it’s also a bit embarrassing because my wife said “maybe it’s from all the running” and I rolled my eyes as if to say “that’s not really how this works”. Time to eat some humble pie! (Or not mention it)

[Mirabellegage in reply to Timjonze]

Well - it’s just a theory and correlation doesn’t always equal causation! But definitely worth keeping in mind and seeing if it is a pattern for you.

[Timjonze in reply to Mirabellegage]

Oh for some reason I read it as your doctor had told you this. But I see now it’s just an idea. An interesting one though. Ok, humble pie remains on plate for now!