Blood : My hematocric is low and I have had my... - MPN Voice

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ChillyAsh34 profile image
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My hematocric is low and I have had my hydroxycarbamide reduced ,now a blood test shows i am low in iron and have to have an iron infusion,has anyone else experience this any comments will help

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ChillyAsh34 profile image
ChillyAsh34
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5 Replies
MPNJoe profile image
MPNJoe

yes i have same problem H is low and iron very low

ERei profile image
ERei

Same exact thing happened to me. I became profoundly anemic twice!!! Became short of breath & my #s plummeted. Went from HU 500mg every day to every other day. Hope your numbers stabilize & you feel well!

saltmarsh profile image
saltmarsh

Well that's not fun. I'm 76 and a few years ago while getting phlebotomies and on HU, I became severely iron deficient. The phlebotomies were stopped and I was put on iron tablets for several weeks. That solved the problem for me.

By the way, my new doctor stopped the phlebotomies well over a year ago and I haven't had an iron problem since. Occasionally he'll direct me to resume them for a short period and then discontinue.

It can be somewhat of a complicated issue and forum member Hunter has posted several informative commentaries if you do a search.

Good luck. I know it can be pretty uncomfortable to live with but once it's corrected you'll feel great. Going forward make sure they are monitoring your iron levels periodically.

saltmarsh profile image
saltmarsh in reply tosaltmarsh

Correction - my new doctor directed me to resume the iron tablets

hunter5582 profile image
hunter5582

Treating a MPN is always a balancing act. HU and other cytoreductive agents can decrease all three types of blood cells, HU can cause anemia; however, iron deficiency is a separate issue. Iron deficiency can also cause anemia. Iron deficiency can also cause reactive thrombocytosis. It would be important to know why you are iron deficient. This is a part of the overall picture of what is going on.

hope you get it all sorted soon.

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