Experiences with Anagrelide

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Anagrelide and heart palpitations

put me on anagrelide. I had palpitations for a month before I had an episode at his office.. He changed me back to Hydroxy that day and no more palpitations. Good luck at your appointment.put me on anagrelide. I had palpitations for a month before I had an episode at his office.. He changed me back to Hydroxy that day and no more palpitations. Good luck at your appointment.

NightFishingin MPN Voice

Haemo Update

However, Haemo advises that I SHOULD be on platelet reducing medication , suggesting Anagrelide . I've been left for another four weeks to settle down further after which she wants me to start on small dose Anagrelide .However, Haemo advises that I SHOULD be on platelet reducing medication , suggesting Anagrelide . I've been left for another four weeks to settle down further after which she wants me to start on small dose Anagrelide .

azaeleain MPN Voice

Et progression to mf and bone marrow biopsy.

Been on hydroxycarbamide and anagrelide ,but transferring to interferon. Diagnosed with mf this week and very scared. Need fortnightly transfusions and bone marrow biopsy. Any support would be gratefully welcome. Also am self employed and concerned re finances. Sue xBeen on hydroxycarbamide and anagrelide ,but transferring to interferon. Diagnosed with mf this week and very scared. Need fortnightly transfusions and bone marrow biopsy. Any support would be gratefully welcome. Also am self employed and concerned re finances. Sue x

soomooin MPN Voice

GI bleeds

Hi, I would like to ask everyone who has taken Anagrelide and hydroxy whether these tablets have ever been implicated in stomach, oesophageal, or small intestine bleeding.Hi, I would like to ask everyone who has taken Anagrelide and hydroxy whether these tablets have ever been implicated in stomach, oesophageal, or small intestine bleeding.

jointpainin MPN Voice

Viruses on HU, what about Anagrelide?

Some of you mentioned getting infections while on HU (hydroxyurea, hydrea) are people on Anagrelide getting more infections than they normally think they would?Some of you mentioned getting infections while on HU (hydroxyurea, hydrea) are people on Anagrelide getting more infections than they normally think they would?

Osteomyelioin MPN Voice

anagrelide

Wonder if anyone older that 60 has ever had heart problems while on Anagrelide. It sounds like a terrible drug but HU was causing so many side effects. Platelets have been normal for 2 yrs. Thanks a lotWonder if anyone older that 60 has ever had heart problems while on Anagrelide. It sounds like a terrible drug but HU was causing so many side effects. Platelets have been normal for 2 yrs. Thanks a lot

kp27kathleenin MPN Voice

Alternative treatments for Busulfan

At the time, the main treatments were Hydroxycarbamide, followed by Anagrelide and Busulfan as a last resort. She was first treated with Hydrox but the side effects were severe and she was then treated with Anagrelide but after a period this was changed to Busulfan as her platelets increased.At the time, the main treatments were Hydroxycarbamide, followed by Anagrelide and Busulfan as a last resort. She was first treated with Hydrox but the side effects were severe and she was then treated with Anagrelide but after a period this was changed to Busulfan as her platelets increased.

Folly41in MPN Voice

Shortness of breath

I started anagrelide about 3 weeks ago, in addition to my Jakafi I’ve been taking for a while. Any thoughts?I started anagrelide about 3 weeks ago, in addition to my Jakafi I’ve been taking for a while. Any thoughts?

Cja1956in MPN Voice

How to cope with palpitations from Anagrelide.

What is the best way of coping with palpitations caused by Anagrelide?What is the best way of coping with palpitations caused by Anagrelide?

Mufftreacsin MPN Voice

Ibuprofen patches?

I do on rare occasions take a couple of ibuprofen, I've been prescribed co-codamol but hate the side effects, as if I don't have enough side effects with the Anagrelide and ET!!I do on rare occasions take a couple of ibuprofen, I've been prescribed co-codamol but hate the side effects, as if I don't have enough side effects with the Anagrelide and ET!!

lizzziepin MPN Voice

High platelet count? Anagrelide? Hydroxyurea?

He was told to stop hydroxy and doctor prescribes anagrelide one pill twice daily.He was told to stop hydroxy and doctor prescribes anagrelide one pill twice daily.

xlovechristinein MPN Voice

Has anyone had to give up work due to having MPN ?

My heam has changed me to anagrelide, saying hopefully I will tolerate it better than hydroxy, but unfortunately 6 weeks on, I feel worse than ever 😐. I’ve not been able to work for that last couple of months due to the fatigue and feeling very low in my mood.My heam has changed me to anagrelide, saying hopefully I will tolerate it better than hydroxy, but unfortunately 6 weeks on, I feel worse than ever 😐. I’ve not been able to work for that last couple of months due to the fatigue and feeling very low in my mood.

M4rl3ym00in MPN Voice

Results from hematologist

So now he is putting me on anagrelide. He still doesn’t want me to take an iron supplement. I read that a high RDW causes anemia. I’m not sure if he is doing the right thing. I’m grateful for any thoughts on this.So now he is putting me on anagrelide. He still doesn’t want me to take an iron supplement. I read that a high RDW causes anemia. I’m not sure if he is doing the right thing. I’m grateful for any thoughts on this.

Cja1956in MPN Voice

Hydroxycarbomide and Neutropenia

It’s quite aggressive and he can’t take anagrelide as he has already had a heart attack caused by the ET. His platelet counts are within a good range now (and red is fine) but his Neutrophils are super low and he has quite bad neutropenia due to the medicine.It’s quite aggressive and he can’t take anagrelide as he has already had a heart attack caused by the ET. His platelet counts are within a good range now (and red is fine) but his Neutrophils are super low and he has quite bad neutropenia due to the medicine.

intothewoodsin MPN Voice

I was diagnosed with PV in 2016 and live in North Yorkshire

After a 18 months of weekly to 2 weekly venesections, trying but not having posituve results from anagrelide and interferon I am now well controlled on Warfarin and Ruxolitinib ( because of a melanoma in the past I cannot take hydroxyurea).After a 18 months of weekly to 2 weekly venesections, trying but not having posituve results from anagrelide and interferon I am now well controlled on Warfarin and Ruxolitinib ( because of a melanoma in the past I cannot take hydroxyurea).

Dianne-Guisboroughin MPN Voice

Anagrelide

My oncologist wants me to start anagrilide ASAP but I’m scared of the side effects I’m 35 with high platelets and doctors still haven’t diagnosed me or reason why I have it .My oncologist wants me to start anagrilide ASAP but I’m scared of the side effects I’m 35 with high platelets and doctors still haven’t diagnosed me or reason why I have it .

faith949in MPN Voice

Foot ulcers

I cannot begin to explain how debilitating and painful this ulcer was I'm now on Anagrelide . This is something I feel should of been picked up sooner as it was 8 weeks before anything was done. Perhaps a word of warning to anyone on Hydroxy.I cannot begin to explain how debilitating and painful this ulcer was I'm now on Anagrelide . This is something I feel should of been picked up sooner as it was 8 weeks before anything was done. Perhaps a word of warning to anyone on Hydroxy.

Benjamin12in MPN Voice