Experiences with

Anagrelide

Hi everyone. Since having to give up Hydroxy nearly 2 years ago, because of side effects , I have been on aspirin and omeprazole only. That has worke until now, but I saw my haemotologist yesterday and , while the red count is still within a normal range, my platelets are now beginning to climb. The

She said more people have side effects with Anagrelide .... Thoughts welcome please Carolyn x

My doctor wants me to switch to Anagrelide. I am not sure about this treatment. Has anyone else taken this. He has also ordered a LDH on my bloodwork. Any info or advice would be greatly appreciated.

Being on hydroxy and anagrelide her platelets are within normal limits. Her white cell count is always high though. The consultant seemed to think that the white cell count was ok when we asked if it might be worse or better if she ever caught covid. Last night on BBC was a programme on immunity.

Anagrelide is under discussion, which I am not keen about due to side effects. Or I could try re-introduction of the HU or Peg. Each had their benefits (and side effects) so I wondered about low dose of both.

I have ET Jak2+ and currently on anagrelide and aspirin. My haematologist confirmed that it is quite safe for me to have the vaccine. In fact he said Pfizer is the preferred option with compromised immune systems.

I have had ET for about 10 years now, taking hydroxycarbamide and anagrelide during this time. Developed vertigo a few weeks ago out of the blue. Having bloods done this week and telephone consultation next week. Anybody else have this?

Anagrelide is out due to previous heart attack... No idea what else can be used so wondering if anyone was in the same boat!

I’m already taking 17 hydroxi and 9 anagrelide a week. I know an increase of even one anagrelide is no good as I recently had to drop 1 and raise hydroxi by 1 Feeling drained and low!! I have a phone consultation on Tuesday.

He adds that in the meantime he will consult with the 'Regional Centre of Pharamco-Vigilance' (I live in France) and that if it seems prudent to take me off the Hydréa, he proposes 'another non-mutagen treatment: Anagrelide (XAGRID©).' Has anyone had any experience of this drug?

Now I'm back on Anagrelide and these headaches are driving me crazy not to mention I feel dizzy. Hoping my body adjust soon. I remember having these headaches when first started taking Anagrelide 3 years ago.

I live in Florida and can’t get Anagrelide at any of my stores. I tried ordering from Canada but no availability. Does anyone have a contact of a pharmacy that you know of that could possibly have any Anagrelide. Thank you

I’ve been on Anagrelide for a few years without any problems, but I’ve recently developed very high blood pressure and palpitations, my GP has prescribed tablets and statins, (to be collected tomorrow) I didn’t connect the problem with the Anagrelide until tonight and having checked the leaflet in the

Put then on anagrelide which did not work. Platelets levels ran up to 1.3m. Offered the P32 treatment which was amazing. Platelets levels dropped to 350 within 3 weeks and held for several months. Was advised at the time that I would need further treatment within 2 years.

Hello everybody Haven’t been on fo a while as I feel I can’t help much 6years ago I was diagnosed with ET and for 3years this went along nicely with HU and aspirin then I very suddenly progressed to MDS and put on anagrelide to no avail then Rux also to no avail and the Azacitidine to no avail I then

I’m on Anagrelide and aspirin, plus co-codamol for my arthritis. My platelets etc are ok, had my check up Wednesday. I was anaemic and on iron tablets but my counts have come back up so off the iron tablets now. I’d appreciate any advice. Thanks

However, Haemo advises that I SHOULD be on platelet reducing medication , suggesting Anagrelide . I've been left for another four weeks to settle down further after which she wants me to start on small dose Anagrelide .

I spoke to my specialist nurse about 10 days ago, she told me I wasn't extremely high risk as I am on Anagrelide which doesn't lower immunity as much as hydroxy, but to err on the safe side and stay in. So I am doing as I am told. I've been catching up on jobs like sorting my wardrobe out.

put me on anagrelide. I had palpitations for a month before I had an episode at his office.. He changed me back to Hydroxy that day and no more palpitations. Good luck at your appointment.

I haven’t gone back onto medication yet but my haematologist says I can consider anagrelide rather than hydroxycarbamide. What is anyone’s opinion on this ? I’ve heard there can be horrendous side effects . - Thankyou!