I have a diagnosis of polycyhthemia which I have recently started having venesections for (2 since April). After my second one I became really iron deficient so have been taking ferrous fumerate tablets for almost 2 months.
My haematologist seemed really pleased about this, as the iron deficiency would stop my red blood counts going up. At the moment he hasn't set blood limits for the venesections as he wants to do a bone marrow biopsy in a few weeks (:s) and also to get an idea of how my blood counts link to my symptoms of tiredness etc.
I'm feeling very tired and unfocused again now but for me iron deficiency and high Rb counts feel quite similar so I don't know whether to go to the hospital for a venesection or not.
So I guess my questions are has anyone else struggled with iron deficiency after venesections?
And also how do you manage the responsibility of when to have a venesection or not or to check your blood counts?
I'm feeling a bit overwhelmed with trying to make this decision and am still relatively new to this.
Thanks in advance for any advice!