Vitamin D

[Kelly2]

So is vitamin D a culprit for progression? Because my haematologist did not answer this question. I was so afraid that I stopped it altogether and I do need it as I am deficient.

[Paul123456]

I think this Vit D scare story was based on one research article involving mice. IMO too early to panic/stop Vit D but I have reduced my intake. Swings and roundabouts, we do need Vit D.

I’m at Guys tomorrow so will ask the question.

[Kelly2 in reply to Paul123456]

Please do. My doctor a professor did not even reply to me.

[Jacqx17]

Hi my haematologist (who is very good) told me to take Vit D as I was deficient last year, I still take it and she hasn’t said to stop.

[beetle]

Vitamin D deficiency can contribute to bone pain so Prof Harrison started me taking it for that reason. We seem to walk so many tightropes!

[Jeftheref]

I’m also taking half the vitamin D dose recommended by consultant. I read the article on the mice as well. I did mention it to consultant but he didn’t have any views on it. I stop the dose during summer months and try to get outside in the sun, with factor 50 of course.

[Kelly2 in reply to Jeftheref]

If you use sunscreen you don't get the vitamin

[Hidden in reply to Jeftheref]

NB: if you use sun cream, your body can’t make its own vit D. 😕

[Jeftheref]

“Sunscreen can reduce the sun's adverse effects, but there are concerns that it might inhibit the body's production of vitamin D. In a new study, however, investigators recorded an increase of vitamin D in participants during a week of cloudless weather, with very high UV index, even when sunscreens were used properly and prevented sunburn. “

[linphy]

My immunology consultant told me 2 years ago, I had vitamin d deficiency. I was advised to take 2 a day winter time and 1 during summer

[Anag]

I’ve been to 5 hemos. 2 of them had no idea about vit d or other vitamins or minerals. They stay quiet and in my opinion don’t count. The three others say no problem and I take 40,000 IUs weekly and 60,000 once a month. I need this amount to stay in the optimal zone. I take lots of other stuff too. You must only be careful not to take any supplements that are antioxidant too close to your meds. My Anagrelide (ie) has a 1/2 life of 1.3 hours, therefore I take my vit c etc at least 3 hours later and 3 hours before my next dosage.

I’ve been taking this amount of D for 20 months and I’m fine. 😁 Anag

[Kelly2 in reply to Anag]

Hi. Do you take it with Vit. K2?

[Anag in reply to Kelly2]

We eat a lot of Vit. K.

[Wyebird]

Hi, I agree with others who say vit D is not absorbed when wearing sun cream. Research has shown that rickets is making a comeback because parents are using suncream on children. It’s a balance for us. I walk my dogs for approx 40 a day in the morning. Although I haven’t been tested I think this might be enough to ward off a lack of it. I’ve been laid up recovering from a heel op these last few weeks so a good opportunity to request a test when I go for my next appointment.

[Kelly2 in reply to Wyebird]

Yes half an hour with the sun seeing your face and arms should be ok. In winter though one should need the vitamin.

Personally I don't like sunbathing. So even in the summer I am deficient!