SCT Journey update No. 13: Hi all, Now at +20... - MPN Voice

MPN Voice

11,172 members15,635 posts

SCT Journey update No. 13

LFCLove profile image
27 Replies

Hi all, Now at +202 days post transplant!

Have been feeling very well apart from the “normal” aches and pains associated with getting older!

Had another BMB at the end of February then last week had a DLI as my T-cells were falling.

The BMB was ok since there was entonox on offer and am still waiting on the results of this (about three weeks).

The DLI was a very short procedure, one syringe full of fresh lymphocytes, few checks on BP etc. and we were out again in an hour. Further infusions if needed are to be after three months. These are from frozen and the anti freeze used before infusion can cause a reaction and also smells like popcorn!

Has also been explained that increased chances of GvHD at about six weeks after but will deal with that if anything happens.

Will be back in clinic mid April so hopefully they will have all results in by then.

Thanks again to all who have responded in the past, it’s good to know there are others who understand or who want to understand more…

G.

🤓

BMB - bone marrow biopsy.

DLI - donor lymphocyte infusion.

GvHD - graft versus host disease.

T-cells - immune system white blood cells.

( sorry if you already understand these acronyms/initalisms)

Written by
LFCLove profile image
LFCLove
To view profiles and participate in discussions please or .
Read more about...
27 Replies
hunter5582 profile image
hunter5582

Glad to hear that things are going well. Long may it continue!

Poppy6060 profile image
Poppy6060

Good news sounds like you have a good team around you hope you keep doing well xx

Spanelmad profile image
Spanelmad

Glad all is well.in your world

PT99 profile image
PT99

Thanks for the continued updates and glad you’re doing well.

ETinNYC profile image
ETinNYC

How wonderful to hear your update. Will be keeping fingers crossed for good news from the BMB. Hope things continue to go well for you. And, I'm sure Liverpool's performance has also been helpful in keeping spirits up! Sending hugs from NYC.

MF_wife profile image
MF_wife

thank you for sharing your journey - brilliant to hear you are feeling well and wishing you good results from the BMB 😊

Aldebaran25 profile image
Aldebaran25

thank you for the update , always very informative, and it is good to hear you are doing well. All the best going forward!

dnaleor profile image
dnaleor

Keep doing well 👍

Maurabawn profile image
Maurabawn

Thankyou for the update and for the acronym explanations. Keep going - you are doing it!

Dodders profile image
Dodders

Keep up the good work 😀. Sounding positive

EmeraldA profile image
EmeraldA

Thank you for sharing your experience with us all.

Great news, hope things are well and this continues for you

ETket profile image
ETket

It's great having someone explain all the lingo!

JP1952 profile image
JP1952

Well done you. It can't be easy with the continual tests and procedures, none of them particularly pleasant but it's heart warming to know things are looking good for you . Thank you for the updates, so relevant to so many, and I definitely appreciate the acronym explanation .

Bullace profile image
Bullace

Thank you so much for keeping us informed of your progress. I do hope all continues to go well for you.🤞

KLCTJC profile image
KLCTJC

so happy things are going well! Great news❤️

ainslie profile image
ainslie

congratulations 👍

Bluetop profile image
Bluetop

Thanks for shaing your good news. Well done!!

bluebird567 profile image
bluebird567

Thank you for your updates and continued good health. Always good to hear positive stories. May it continue. 🙂👍

Cja1956 profile image
Cja1956

Thanks so much for the update. I have a tentative date for May 2, so it’s encouraging to hear good reports. Keep it up!

SouthSideA profile image
SouthSideA

Thanks for this update! Keep going!

saltmarsh profile image
saltmarsh

Congrats on the progress. Best wishes going forward

Gaithersburg profile image
Gaithersburg

Thanks so much for the update - it's great to hear how you are getting on. Hope everything continues to go well for you. Best wishes

Mieshie profile image
Mieshie

Fantastic news, 202 days and counting! It is also encouraging to read positive about care team and process. Very happy for your success.

Miriammusic profile image
Miriammusic

Thank you for sharing. I am awaiting results of genetic testing. Received the BMB results already. So, I am waiting to see if SCT is on the horizon for me. I love reading your posts. Thrilled for you.

Meatloaf9 profile image
Meatloaf9

👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍 Best Always

CanadaG profile image
CanadaG

Overall it sounds like you're doing well and have a great attitude. I'm very happy for you, thanks for sharing

Not what you're looking for?

You may also like...

SCT Journey update No. 12

Hi all, I’m now + 168days post SCT. Consultant clinic visit last Friday showed that white, red...
LFCLove profile image

SCT Journey update No.11

Here I am @ +120 days post SCT. Have just finished the intravenous treatment for the adenovirus...
LFCLove profile image

SCT Journey update No.9

Here I am @day 55 post transplant! Still on a weekly visit to Addenbrookes and now have my Hickman...
LFCLove profile image

SCT journey update No.3

Hi all, just to give you an update on my journey towards my *Allogenic Stem cell transplant, my...
LFCLove profile image

SCT Update Again

I thought I would just check in and update my SCT journey. I am over 300 days post transplant now...
Otterfield profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.