Vitamin D

[eastwood1932]

Does anyone at MPNVoice now the answer to this please.

I have been offered the free 4 months of Vit D supplements by the government. However it also says that having cancer may mean you cannot take Vit D as some cancers cause high calcium levels. I have ET and am taking HU. Are we able to take this supplement?

Many thanks

Janet

[beckyluck]

Hi Janet

I have ET and am taking Hydroxy, my consultant recommended it when I was diagnosed 3 year’s ago so I start to take it in October through to March.

Best wishes

Becky

[linphy]

Hi Janet, my consultant recommended I take vitamin D 3 years ago, it was recommended I double up on vitamin D winter. Mine isn't on prescription I buy mine over counterLin

[Jody00]

Hi I have jak-2 mutated ET I have a few pains etc arthritis my doctors advised me to take ET,then I ask my haematology just to double check and advise same to take from September to March has we don't get enough sunlight for the vitamin D we need and said is a good idea if this is any help or ask your haematology first with me only on 75mg aspirin for condition we got don't know if different for each person but not sure i would ask your haematology first just be on safe sideXxx

[Jody00 in reply to Jody00]

A mean sorry to take vitamin D made a mistake on the second line sorry about thatxx

[jointpain in reply to Jody00]

Jody, if you click next to reply below your posting where it says more you can select edit or delete 🥳

[Spirit123 in reply to Jody00]

I’ve got ET jak 2+ and have opted in for the free supply. I take vit d in winter but if not on prescription then opt in for the free supply from January. Four months worth free. Don’t know what strength they’ll be coming via government. Stay safe. Stay well.

[Mostew]

I take vit d Plus with added k2 a and e high strength5000 iu

[Superwoman]

I also take vitamin D high dose, but in a spray into the mouth, gets straight into the system, it was recommended by my Haematologist, not heard how it increases the calcium, if anything else as we get older retaining a good calcium level is very beneficial for the bones I would of thought which vitamin D is part and parcel of and of course sunshine.Jean

[Inca]

I have been prescribed Vit D since diagnosis 11 yrs ago. We are not short of sunshine in Southern France,but with P V it's better to be in shade & keep cool.I think it's a good idea to take it....Best to you.

[eastwood1932]

Wow, thanks for all the replies, seems it is something I should have been doing anyway. Wonder why neither my GP or heamatologist have mentioned it in the past. Anyway, thanks to everyone, I will take the government up on their offer

[Lifam]

We need vitamin D for sure. I have been taking D3

[KentBee]

Hi, I have also been offered the Vitamin D by the Government. I will look on this site for info. I also take Hydroxycarbamide and Aspirin.

[Aldebaran25]

Have PV , only on aspirin and phlebotomies, haematologist at Guy’s two weeks ago said taking Vit D is fine. However, as I may also have sarcoidosis, taking Vit D may be a problem (in some inflammatory conditions such as sarcoidosis, high levels of active Vit D are produced by the body that lead to hypercalcaemia which is very very dangerous.)

[Ebot]

I’ve been taking Vit D throughout lockdown especially as I’m on hydroxy. (There were murmurings earlier in the year about everyone taking Vit D so I thought I get in before there was a run on them like everything else at the time!)

The Govt prescriptions are (as far as I understand) the lowest strength. The evidence suggests that higher strengths may be more beneficial to more people. So I’ll stick with the D3 I have - £11.99 for a year’s supply.

[Jennytheb]

Hi, I started Vit D drops, I don't know the answer to your question but just to say that I do feel better having taken it.

[azaelea]

Hi Janet, I received that letter with offer of free vitamin D yesterday and sent for it straight away as I remembered several MPNers had recently posted that they took it over the winter months and some had had it prescribed by their Haematologist, so I'm grateful to have this offer. Regards, Fran

[SoledadBarcelona]

ncbi.nlm.nih.gov/pmc/articl...

This is a general information.

There are some papers a favor and against taking colecalciferol or Vitamine D3 in myeloproliferative syndromes. Check.

[Jody00]

Hi thankyou jointpain😊.I also got a letter today from the government to get free vitamin D has we are clinically extreme vulnerable and i think most of people going be told to take vitamin D aswell Xxx