headaches & Peg Interferon

[Exeter21]

on my 4 th dose of Peg Interferon. First 2 we’re ok headaches on day after injection. But after 3 & 4th injections I have constant headache & dizziness. I speak to consultant this week. I hoped for improvement by now but headaches continue.

So annoying as Hydroxy was terrible effects also & hoped for improvement on injection.

Only on 45 weekly . Just wondered if anyone else had problems. I only weigh 60kg & have been sensitive to anything apart from paracetamol all my life . Drinking gallons of water & anti inflammatory diet .

Julia Exeter . UK .

[Fizzydog]

Hi when I first started taking peg interferon it gave me flu like symptoms afterwards & it continues to do so. I learnt to take it before I went to bed with two paracetamol. That way I slept through most of the side affect symptoms normally by 11am the next morning I feel fine again. I have an active job so make sure I take it when I know I’m on a day off the next day. When I first went on it 2019 it took a while for the dosage to be set right with my haematologist it’s a bit of juggling at the start to find the best frequency of dose. It will settle down just takes time. For me the advantages of it far outweighed the side effects. It cured for me with the massive fatigue I had and itching skin. It’s been my life saver keeping me able to do my job & stay active. Everyone is different and I really hope it settles down for you and you start to feel good again.

[Exeter21 in reply to Fizzydog]

thnx I do same with the night injection & 2 paracetamol. It’s just strange it’s kicked off in force after 3rd & 4 th with vengeance.

I will push on and hope my body adjusts as really want to stick with interferon . Thnx for reply . Julia 👍

[Fizzydog in reply to Exeter21]

I hope it settles down for you soon your haematologist will be able to change the dose or frequency of it for you if it continues. I hope you feel better soon.

[Exeter21 in reply to Fizzydog]

Thanks I speak to them this week . Our bodies all so damn different on these medications 👍 Julia

[havashan]

I do get dizziness after I inject. So, I do the same as others. Take it at night with Tylenol and I feel OK the next day. I also take 45 mcg, but every other week as I am a small person and very sensitive to meds as you are.

[hunter5582]

I have had a different set of minor PEG adverse effects. Itching and occasional rashes. I have been taking a daily Claritin, which manages it nicely. i have noticed that the itching does not seem to be a present anymore. Perhaps my body is simply adjusting. Like you, I an HU-intolerant. The IFNs are definitely a better choice for me.

Hope you find that your body does adjust. Please do let us know how you get on.