Hi all , does anyone find HU / Et causes them to have episodes of tummy upset?mi seem to be getting it more often , i only take 500 mg HU daily , not has much as some people on here ! been on it 17 mth month , have mentioned my issues to heam but he said it woukdnt be the treatment !! i do suffer with alot of stress and anxiety at home hich may not help of course . have another blood test on 25 th then see heam on 28th
many thanks Holly
Hi I also when stressed out get an upset tummy, think it is all to do with my IBS and diverticulitis so stress is something you have to try to avoid as in my case I practice mindfulness which does help and if I cannot keep off the loo take an Imodium instant just one, pop on the tongue and let it dissolve this really helps. The other thing is if it is IBS try to avoid to much fibre and fruit even though they tell you to step it up this can aggravate the situation, just try to drink plenty of water as this stops dehydration, also you could try and get some live culture tablets or drinks, these I have found have helped my stomach going into overdrive, and puts back the good bacteria, but do check with your doctor first, mine said it was fine but not all have the same view.
I have been on 4,500 Hydroxy a week for nearly five years now and have tolerated really well which is amazing for me as most drugs seem to upset me one way or another, have a whole load of them listed at my Docs, think they despair of me at times 🤨 well if they make me unwell I won’t take simple as that, mind you since being told that I had I had ET and going on Hydroxy my health and fitness had improved dramatically, long may it last.
So try to do more exercise this really does help with stress and well being proven fact, you don’t have to go mad start off with a walk round the bloc then start to go a bit further each time, listen to the way you breath this is another way of letting go of stress, but you can buy all sorts of relaxation cd or download to an I phone from the internet on this techniques it’s called Mindfulness!! We all need to breath, but sometime we get it wrong and it causes problems.
Sorry to waffle on, know exactly how you feel, this is just some suggestions, they might help for me they have,
Jean x
Hi Jean thanks so much for your informative post , yes my Gp told me to do headspace from internet but it gets bit boring will deff load down mindfulness , im a strssy anxious person and dont like feeling ill and panic a bit so its a vicious circle eh glad to hear your doing well and yes i can do little excerise like short walks even with my bad back n neck , you take care Holly x
Hi Holly
I get it a lot and assume it's IBS. My heamotologist said the same that it's nothing to do with HU or the treatment and wasn't really interested . I agree with Jean about the fibre and that stress makes me much worse and like you I tend to panic and think all sorts of things so your not alone . Hope you feel better soon . Pippa
Hi. Def agree with meditation it helps. My son has had ET since he was 10 now 17. Over the last year he has been getting stomach cramps. I def think it’s Hydrox. About every 4 weeks he gets unwell and this coincides with the stomach cramps. We stop his medication for a few days and then restart when he is feeling better.
Hi thank you , yes it does say in the Hu leaflet it can cause constpation and diarhea ,even though Heamatoligists say no ! I dont take medication on bad day ! yes with me i get stressed also and this makes stomach cramps etc worse
I find Imodium is fantastic. They certainly help with the cramps and tummy upsets - enough to cope with without suffering!!!! Stress can really aggravate tummy upsets but sometimes life can be very stressful it's finding the best way to cope. Give the Imodium a try and that would be one stressful problem sorted for you.
All the best Pat
Hi Pat, thank you yes i do keep imodium in doors, but take as last resort , because sometimes i think is it a bug ? or something i have eaten so my thinking is get it out the system !. yes im looking into meditation on line ones i have seen are chargable which surprised me . regards Holly
Hi catwoman2015, it’s wyebird here. Do you take aspirin also? That can upset the tummy.
I take lazoprozole to combat indigestion. Up until I went to 15 tablets a week I was fine one 1 every morning but 16 seemed to upset my stomach so occasionally I took a lanzoprozle in the morning and one at night before taking my hydro. Then, I discovered quite by accident that taking 1 lanzoprozole at night is all I need. We are all different stress and anxiety can cause indigestion. Maybe a visit to your GP or even taking an over the counter antacid might do the trick. Do seek advice from the medical profession first though.
Good luck keep me informed.
Hi wyebird, thank you for replying , I have been on Lanzoprozol, for good few years now 30 mg daily when i was on the asprin . since being on clopidrell i wnt down to 15 mg , but hasnt worked for me anymore , so i had a wiord with a Gp yesterday. described all my symptoms , she is trying me on Apercap 60 min before food so will see how this goes i have always had ibs tyoe symotoms all my life but the problem now is more often since HU ! I myself was concerned i may have stomach ulcer ( both my prents had ) however i am never sick and i dont have bad tummy pain mainly gripy wuth these attacks like i say im also very anxious person !! appreciate your advice. regards Holly
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